Chatting with Charlie

Who gets to be disabled enough?

45 min · 21 de sep de 2025
portada del episodio Who gets to be disabled enough?

Descripción

Living with a rare disease means having to face doctors who don’t believe you, regardless of the evidence of suffering , partners who become carers- gradually or suddenly, and the world’s obsession with labels. In this episode I talk about the importance but also -coexisting- unimportance of diagnoses, the role of mental health in chronic illness, and what it means to exist outside the “being- and having to be inspirational” narrative. Covering: 1. A brief introduction 2. The Online Debate: Who’s “Disabled Enough”? 3. Living the In-Between. Looking to well to be disabled but to disabled to be well. 4. Medicine & Misbelief, struggles with rare diseases — lack of cure or treatment. 5. Personal & Social Dynamics: How relationships shift: partners becoming carers. 6. Rethinking Narratives: Why “inspirational” framing flattens lived experience.

Comentarios

0

Sé la primera persona en comentar

¡Regístrate ahora y forma parte de la comunidad de Chatting with Charlie!

Prueba gratis

Empieza 7 días de prueba

$99 / mes después de la prueba. · Cancela cuando quieras.

  • Podcasts solo en Podimo
  • 20 horas de audiolibros al mes
  • Podcast gratuitos

Todos los episodios

25 episodios

episode Who gets to be disabled enough? artwork

Who gets to be disabled enough?

Living with a rare disease means having to face doctors who don’t believe you, regardless of the evidence of suffering , partners who become carers- gradually or suddenly, and the world’s obsession with labels. In this episode I talk about the importance but also -coexisting- unimportance of diagnoses, the role of mental health in chronic illness, and what it means to exist outside the “being- and having to be inspirational” narrative. Covering: 1. A brief introduction 2. The Online Debate: Who’s “Disabled Enough”? 3. Living the In-Between. Looking to well to be disabled but to disabled to be well. 4. Medicine & Misbelief, struggles with rare diseases — lack of cure or treatment. 5. Personal & Social Dynamics: How relationships shift: partners becoming carers. 6. Rethinking Narratives: Why “inspirational” framing flattens lived experience.

21 de sep de 202545 min