Chatting with Charlie

My disability story

34 min · 28 de feb de 2026
Portada del episodio My disability story

Descripción

I discuss my own disability, what it means to have a chronic illness and a dynamic disability. I take a look at the social model of disability as well as what problems and questions we face daily. And lastly some tipps how to be polite and not problematic interacting with disabled folks.

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25 episodios

episode Who gets to be disabled enough? artwork

Who gets to be disabled enough?

Living with a rare disease means having to face doctors who don’t believe you, regardless of the evidence of suffering , partners who become carers- gradually or suddenly, and the world’s obsession with labels. In this episode I talk about the importance but also -coexisting- unimportance of diagnoses, the role of mental health in chronic illness, and what it means to exist outside the “being- and having to be inspirational” narrative. Covering: 1. A brief introduction 2. The Online Debate: Who’s “Disabled Enough”? 3. Living the In-Between. Looking to well to be disabled but to disabled to be well. 4. Medicine & Misbelief, struggles with rare diseases — lack of cure or treatment. 5. Personal & Social Dynamics: How relationships shift: partners becoming carers. 6. Rethinking Narratives: Why “inspirational” framing flattens lived experience.

21 de sep de 202545 min