The Guilt I Carried That Was Never Mine: Living with Chronic Illness and Letting Go

When Chronic Illness Changes Who I Thought I Was

In this episode, I’m talking about the grief of missing who I used to be before chronic illness changed my body, my confidence, and the way I moved through life. I’m reflecting on identity, acceptance, and the quiet habit of measuring today’s body against yesterday’s freedom. Through a memory from Sedona, Arizona, I revisit a moment when I had to face what I’d lost, what I was still carrying, and how hard it can be to care for the person who remains. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

New Name, Same Body: Why My Chronic Illness Podcast Changed

In this episode, I’m talking about the new name, the new season, and why I needed a podcast title that felt closer to the stories I actually tell. I’m thinking about chronic illness, identity, breath, survival, and what it means to keep going without pretending I’ve become a brand-new person. The name has changed, but the voice, humor, medical reality, stubbornness, and lived experience underneath it are still mine. I’m starting fresh without erasing what came before. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

The Prednisone Demon: Chronic Illness, Steroid Side Effects, and Survival

Living with chronic illness often means depending on treatments that help one part of the body while making another part miserable. In this episode, I talk about prednisone, steroid side effects, sarcoidosis, sleep disruption, hunger, medication dependence, and the strange emotional math of needing something you also resent. It’s a grounded, personal look at survival, adaptation, humor, and the small daily tricks people with chronic illness use to get through the day with some dignity still intact. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

When Anger Feels Easier Than Hope

After reading a blog by someone living with heart failure and pulmonary hypertension, I found myself thinking about the line between anger and surrender in chronic illness. Anger makes sense when your body becomes a full-time job, but bitterness can quietly lock every door. In this episode, I talk about hope, medical trauma, healing, and why believing in possibility isn’t the same as pretending everything is fine. Living with sarcoidosis and heart failure has taught me that hope doesn’t cure everything, but it can keep you involved in your own life when illness keeps trying to shrink it. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

MiniCast: Chronic Illness and Fear: The Small Habits Your Body Quietly Erases

One morning I realized I had stopped doing something completely ordinary. Stretching. Not because I chose to, but because somewhere along the way my body decided it wasn’t safe anymore. Living with sarcoidosis and heart failure doesn’t just affect your health in obvious ways. It quietly rewrites your instincts. The biggest changes don’t always happen in hospitals or test results. Sometimes they show up in small, almost invisible moments. This episode explores how fear lingers in the body, how survival rewires behavior, and how chronic illness reshapes everyday life in ways we don’t notice until something simple disappears. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]