Autism News Update: the ‘Profound’ Label &, Communication Rights

Challenging ASHA with Jeanette Benigas

Guest Dr. Jeanette Benigas, SLP and founder of FixSLP, describes ASHA as a membership association with no legal authority, arguing it maintains power through the Certificate of Clinical Competency (CCC), accreditation control, employer requirements, and pricing that she says creates antitrust concerns. She recounts FixSLP filing an FTC complaint and submitting a bylaw petition for pricing transparency that ASHA allegedly sidestepped. Benigas emphasizes evidence-based practice includes research, clinical expertise, and patient values, and supports families pursuing methods that work. Kaufer cites recent rulings stating ASHA positions cannot override children’s legal rights and introduces his coalition, Communicators for Communication Rights (C4CR), seeking stories documenting harm tied to ASHA-based denials.   Topics 00:40 Stone Story And ASHA 02:10 Meet Dr. Benigas 06:21 FixSLP Origin Story 07:19 CCC Money And Tying 12:36 Why SLPs Fear ASHA 19:49 FTC Complaint And Petition 25:29 Budgets And Low Pay 27:34 Why Lawsuits Stall 32:20 ASHA Blocks Alternatives 34:51 Credential Funnel Control 35:47 State Level Reform Wins 37:20 Courts Reject ASHA Authority 41:03 Evidence Beyond Research 46:01 Why ASHA Dug In 53:18 Politics and NMES Example 57:29 Coalition and Next Steps

Dan Feshbach on Multiple’s Mission

David welcomes Dan Feshbach, founder and board chair of Multiple, a nonprofit autism innovation platform connecting families, entrepreneurs, funders, mentors, and community members. Dan shares his personal origin story after his son Reed’s early language regression and autism diagnosis in the 1990s, describing scarce services and the practical challenges of daily life, which later led him and other families to help start Oak Hill School. Drawing on his entrepreneurial background, Dan co-founded TeachTown to address gaps in autism education and speech-language resources; the platform now serves over 170,000 students across 3,000 districts. Dan explains Multiple’s 12-week accelerator, Launchpad pre-accelerator, Demo Day, and its autism tech database of 600+ companies across 15 categories, noting roughly 60 companies supported and significant capital flowing to cohorts. He emphasizes impact-first innovation built for dignity, access, communication, and “speed of families,” with special concern for lower-resource caregivers.   Find Dan at https://www.multiplehub.org/ [https://www.multiplehub.org/]   Topics Autism Innovation at the Speed of Family: Dan Feshbach on TeachTown, Multiple, and Building for Dignity   Host David Kaufer welcomes Dan Feshbach, founder and board chair of Multiple, a nonprofit autism innovation platform connecting families, entrepreneurs, funders, experts, and community members. Dan shares his personal origin story after his son Reid’s 1993 autism diagnosis, the scarcity of services, and how families co-founded what became Oak Hill School. He describes building TeachTown from a gap in speech and language resources, growing it into a digital education platform serving over 170,000 students in 3,000 districts, and later shifting to launch Multiple. Dan explains Multiple’s 12-week accelerator (and Launchpad pre-accelerator), its autism tech database of 600+ companies, and how rigorous selection emphasizes impact, strong founders, traction, and scalable solutions. The conversation covers why autism innovation is growing, the need for more federal funding, and Dan’s “speed of family” focus, especially for underserved families and nonspeakers, including Reid’s recent spelling progress.   00:00 Podcast Welcome 00:40 Meet Dan Feshbach 03:13 Reid Diagnosis Early Days 06:44 Starting Oak Hill School 08:33 TeachTown Origin Story 11:21 From Exit to Multiple 14:09 What Is an Accelerator 17:56 Cohorts Success Stories 21:55 Why Autism Innovation Grows 27:50 AI Tools for Parents 30:54 Research to Real Products 33:16 Autism Investment Landscape 33:51 Pushing Federal Funding 34:51 Vote Autism Across Aisle 37:04 Impact First Investing 39:13 How Multiple Picks Startups 42:11 Scaling and Visibility 43:36 Launching a First Mile Fund 44:59 North Star Serving Families 46:58 Speed of Family Access 50:02 Lessons from Reid 53:56 Autism Tip Try Tech 56:52 Light on the Spectrum 58:53 Early Testing New Tools 01:01:47 Closing Thanks and Resources

Dr. Gary Stobbe on Adult Autism Care & More

David welcomes neurologist Dr. Gary Stobbe, director of the University of Washington Medicine Adult Autism Clinic and Adult Transition Services at Seattle Children’s Autism Center, reflecting on how scarce practical autism medical expertise was 20 years ago and his own early appointment with Stobbe. Stobbe recounts his path into neurology, early brain-imaging research, and the 1990s “nothing to do” attitude toward autism, alongside his interest in inequities in healthcare delivery. He explains how ICU training to “assume competence” influenced his work with nonspeaking autistic people, discusses motor/sensory barriers such as apraxia and emotional factors affecting communication, and argues—echoing his co-authored commentary—that assisted typing methods merit rigorous study rather than blanket dismissal. The conversation covers genetics, environmental factors, adult outcomes tied to community participation and supported employment, tensions between medical and social justice models, the importance of psychological safety, and examples of meaningful adult progress after school.   Topics 00:40 Meet Dr Gary Stobbe 04:26 Autism Care Then 05:09 Neurology Origin Story 12:09 Assume Competence 16:53 Genetics and Environment 24:54 Alternative Medicine Era 27:24 Community as Treatment 31:14 Advocacy Models Clash 36:43 Non Speaking Barriers 41:15 Missed Potential Screening 42:13 Praxis and Dyspraxia Explained 42:58 Typing Unlocks Understanding 43:51 Emotion Affects Communication 45:58 Motivation and Practice Barriers 47:46 AI and Access Challenges 48:52 Answering the Naysayers 52:55 Strength Based Care Shift 56:54 Neurodiversity at Work 58:21 Advice to Younger Self 01:02:23 Parenting Safety and Risk 01:04:57 Tip Psychological Safety 01:07:13 Fact or Fiction Autism Myths 01:09:15 Life on the Spectrum Growth 01:11:58 Closing Thanks and Subscribe

Disability Rights Under Pressure: Olmstead, Medicaid & More

David and producer Dave Yas discuss interconnected developments they see as threatening disability rights: a recent DOJ opinion reinterpreting Olmstead, proposed Medicaid cuts, and efforts to move special education from the Department of Education to HHS. They explain Olmstead’s longstanding role in supporting community-based living over institutionalization and worry states could use the DOJ memo to justify cost-cutting moves that reduce integrated supports. They describe Medicaid as the “quiet architecture” enabling community living—covering services like therapies, transportation, job coaching, and respite—and note proposed reductions and increased requalification burdens. They argue shifting special education risks reframing a civil right as a rationed health service without a clear implementation plan. They also criticize recent media coverage conflating spelling/RPM communication methods with MAHA, anti-vaccine politics, and “telepathy tapes,” and highlight advocacy responses, including facilitatedcommunications.com and Comm4CommRights.org, and preview an upcoming interview with neurologist Dr. Gary Stobbe.   Visit facilitatecommunications.com [http://facilitatecommunications.com/] Comm4CommRights.org [http://comm4commrights.org/]   Topics 00:39 Why This Episode Matters 03:50 Rights Versus Needs 06:13 Olmstead Under Threat 13:16 Political Origins Of Memo 16:26 Medicaid As Infrastructure 21:10 Special Ed Shift To HHS 23:47 IEP Reality Check 28:07 Fighting School Battles 28:59 Rights Not Services 30:35 Why Cuts Hit Disabled 33:04 Money Politics Power 34:41 Leaders Who Get It 35:45 Media Smears On S2C 41:02 How Journalism Warps 47:10 Clickbait And Misinformation 48:53 New Advocacy Resources 53:11 Hope, Momentum, Next Guest

Beating the Odds: Zach’s Due Process Win Vs. Fairfax County Schools

David interviews advocate Elizabeth Zielinski and parent Jill Janson about Jill’s son Zach, a non-speaking speller, winning a due process hearing against Fairfax County Public Schools on every issue presented. After spelling was added to Zach’s IEP in middle school, the high school team delayed, obstructed, and failed to implement a trained, trusted communication partner, placing him in self-contained life-skills classes, denying electives and homework acceptance, and contributing to failing grades and school refusal. The family first prevailed in a Virginia Department of Education state complaint for failure to implement the IEP, but the district continued delaying corrective action and compensatory services. An IEE by an approved neuropsychologist using the letterboard documented exceptionally high abilities and supported placement in general education. After ESY registration and training commitments were mishandled, the family hired attorney Grace Kim and filed due process. Zach insisted on a public hearing to help other spellers, testified for hours, and the case became a public record emphasizing that non-speaking is not non-thinking and that communication access is essential. Tips include documenting early references to letterboards without branding demands, using FOIA, and careful written communication.   Topics 00:39 Case Victory Overview 03:28 What Went Wrong 05:45 IEP Language Strategy 07:12 Intimidation Tactics 14:14 State Complaint Win 18:56 Freshman Year Fallout 21:02 Homework Rejected 23:30 Communication Demo Drama 27:39 Sophomore Year Stalling 30:44 ASHA Position Debate 34:45 Education vs Medical Lines 35:49 Deflating Expert Power 36:52 Emotional Rollercoaster 37:28 IEE Reveals Potential 41:09 Testing Trauma Story 44:42 ESY Breakdown Sparks Legal 50:19 Due Process Timeline 51:32 Hearing Conditions Evidence 54:34 Legal Strategy Dysregulation 58:01 Zach Testimony Marathon 01:02:17 Takeaways Worth Fight 01:08:44 Tip of Week Advice 01:13:38 Final Thanks Closing