Ep. 9 - Looking Through the “Lens” of Avascular Necrosis

Ep.10 - Life with Type 1 Diabetes

On this episode Julia outlines her journey with Type 1 Diabetes. From a scary start to learning how to live a life with a defective pancreas. Julia shares an honest look at her chronic illness and how it effects her every day life. Use this link for more information on Type 1 Diabetes:  https://www.diabetes.org/diabetes/type-1 [https://www.diabetes.org/diabetes/type-1] If you are looking for support, check out Beyond Type 1: https://beyondtype1.org/ [https://beyondtype1.org/]  If you are looking for affordable insulin, Beyond Type 1 has created a website to help: https://getinsulin.org/ [https://getinsulin.org/]   Individuals can also go to the manufacturer of the insulin they take:  ie:  Lilly or Novo Nordisk or Sanofi or Viatris.   Julia uses an insulin pump made by Tandem. The technology is called Control IQ along with the CGM (continuous glucose monitor) to create an "artificial pancreas"    For more information on this technology, follow these links:  https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content= [https://www.tandemdiabetes.com/landing-pages/x2-pediatric/?utm_source=BeyondType1&utm_medium=dgital_ad&utm_campaign=pediatric&utm_term=ML-1007983_A&utm_content=]    and https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE [https://www.dexcom.com/continuous-glucose-monitoring?utm_source=adwords&utm_campaign=b&sfc=701f3000000athzAAA&gclid=CjwKCAjw4qCKBhAVEiwAkTYsPLZmi5-J2ncv0flpYREscgo3NWy5gBpfM150k5AhOR26Cq2TxSMKEBoCIHgQAvD_BwE] If you would like to reach out to Julia, please contact the zebrachronicles via Instagram @ zebra_pod or via email at  kathaleen.d@gmail.com

Ep. 9 - Looking Through the “Lens” of Avascular Necrosis

This episode we speak with Elizabeth. She is a photographer that was diagnosed with a rare disease known as Osteonecrosis which is also known as Avascular Necrosis (AVN). Listen to her describe her symptoms, diagnosis, and treatment that have led her where she is today. Use this link to find Elizabeth, her podcast, blog, and photographs: https://www.gardenramblings.co.uk/ [https://www.gardenramblings.co.uk/] You can find more information on AVN here:  https://rarediseases.org/rare-diseases/osteonecrosis/ [https://rarediseases.org/rare-diseases/osteonecrosis/]

Ep. 8 - Relief in the form of Alternative Medicine

In this episode, we talk to Sarah. She discusses her symptoms and journey to maintain pain relief of her Rheumatoid Arthritis through alternative medicine. She is a health coach and licensed Doctor of Oriental Medicine. In episode 7, we spoke to her business partner and friend Erica.  Visit this Facebook group  more information on her practice with her business partner Sarah: https://www.facebook.com/groups/reachingfullpotentialthroughholistichealing [https://www.facebook.com/groups/reachingfullpotentialthroughholistichealing] For more information on Rheumatoid Arthritis  visit: https://www.arthritis.org/diseases/rheumatoid-arthritis [https://www.arthritis.org/diseases/rheumatoid-arthritis]

Ep. 7 - The Alternative Zebra

This week we speak with Erica. She discusses her life with Fibromyalgia.  Her symptoms, diagnosis, and journey towards health coaching and move towards licensure as a Doctor of Oriental Medicine. Visit this Facebook group  more information on her practice with her business partner Sarah: https://www.facebook.com/groups/reachingfullpotentialthroughholistichealing [https://www.facebook.com/groups/reachingfullpotentialthroughholistichealing] For more information on Fibromyalgia visit: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Fibromyalgia [https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Fibromyalgia]

Ep. 6 - A Zebra Searching for Answers

This episode we speak with Heather. She was diagnosed with PoTS after years of symptoms that were exacerbated after giving birth. She also faced misdiagnosis of Gitelman Syndrome and progressive symptoms relating to HSD, gastroparesis, cyclical vomiting syndrome, chronic idiopathic hives, Raynaud’s, an a yet to be diagnosed autoimmune disease. For more information on these chronic illnesses, check the links below: Gitleman Syndrome: https://rarediseases.org/rare-diseases/gitelman-syndrome/ [https://rarediseases.org/rare-diseases/gitelman-syndrome/] HSD: https://www.ehlers-danlos.com/what-is-hsd/ [https://www.ehlers-danlos.com/what-is-hsd/] Cyclical Vomiting Syndrome: https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/ [https://rarediseases.org/rare-diseases/cyclic-vomiting-syndrome/] PoTS: http://www.dysautonomiainternational.org/page.php?ID=30 [http://www.dysautonomiainternational.org/page.php?ID=30] Gastroparesis: https://rarediseases.org/rare-diseases/gastroparesis/ [https://rarediseases.org/rare-diseases/gastroparesis/] Raynaud’s: https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571 [https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571] Chronic Idiopathic Hives: https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis [https://www.webmd.com/skin-problems-and-treatments/hives-diagnosis]