Outliving a Chronic Illness Prognosis

Outliving a Chronic Illness Prognosis

In this episode, I talk about what it felt like to hear doctors put numbers on my future, then keep living past the dates that once scared me. I’m reflecting on stage four sarcoidosis, heart failure, scarred lungs, medical uncertainty, and the strange math of planning a life when no one can promise how much time is waiting. This isn’t a miracle story. It’s about fear, adaptation, dark humor, and the ordinary days that feel different when I wasn’t sure I’d reach them. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

Kindness in Healthcare and Chronic Illness Care

In this episode, I’m talking about kindness in healthcare, bedside manner, chronic illness care, and why the emotional side of medical appointments can follow me long after I leave the room. Living with sarcoidosis means I’ve spent years around scans, charts, vitals, instructions, and waiting rooms, but I also remember tone, patience, eye contact, and small moments of steadiness. I’m thinking through why basic kindness is not a luxury in medical care, especially when my body is already tired before the appointment begins. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

The Fake Chinese Song That Became a Chronic Illness Poem

In this episode, I’m talking about a silly song I sing to my dogs, a language I don’t actually speak, and the strange AI surprise that came back when I finally let technology listen. I’m reflecting on ancestry, imagination, chronic illness, memory, and the little rituals that sneak into daily life when my body is tired but my mind is still wandering. It starts with puppies, a tug toy, and nonsense sounds, but it opens a door I didn’t expect. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

Childhood Memories, Chronic Illness, and the Cousin I Never Forgot

In this episode, I talk about my cousin Jenny, a childhood memory I’ve carried for more than fifty years, and the way grief can return through laughter before it ever knows what to do with itself. I’m reflecting on family distance, ovarian cancer, chronic illness, and what it feels like when my body keeps me far from a goodbye I wish I could attend. It’s about cousins, memory, regret, love, and the strange little details that keep people alive inside us. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

Chronic Illness, Mortality, and Never Leaving Angry

In this episode, I talk about an ordinary drive home that turned into a quiet reminder of how fragile life can be. I’m reflecting on a young neighbor’s sudden death, the strange grief of witnessing loss from a distance, and the promise my wife and I made never to leave each other angry. I also talk about chronic illness, uncertainty, marriage, and why small goodbyes deserve more care than we usually give them. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]