The Secret Life of Sibs

Episode 5: Kaitlyn's Experience

27 min · 20 dec 2021
aflevering Episode 5: Kaitlyn's Experience artwork

Beschrijving

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

Reacties

0

Wees de eerste die een reactie plaatst

Meld je nu aan en word lid van de The Secret Life of Sibs community!

Probeer gratis

Probeer 14 dagen gratis

€ 9,99 / maand na proefperiode. · Elk moment opzegbaar.

  • Podcasts die je alleen op Podimo hoort
  • 20 uur luisterboeken / maand
  • Gratis podcasts

Alle afleveringen

9 afleveringen

aflevering Episode 6: Brandon's Experience artwork

Episode 6: Brandon's Experience

Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org [ https://krabbeconnect.org]. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20 dec 202130 min
aflevering Episode 5: Kaitlyn's Experience artwork

Episode 5: Kaitlyn's Experience

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20 dec 202127 min