2023 SCAY Award Winners: Community Partner + Youth Advocates of the Year (Feat. Holly John and Ayana Johnson) - Pt. 1

Sickle Cell + Harvard Student (Feat. Hanif Mouehla)

In this episode, we dive into the inspiring story of Hanif Mouehla, a Harvard student and former sickle cell warrior. Hanif shares his journey of growing up with sickle cell disease, from the challenges he faced in his youth to the curative treatment that changed his life. Support this podcast: ⁠https://anchor.fm/thesicklecellpodcast/support⁠

Sickle Cell + Aging (Feat. Ms. Pat McGill & Linda Wade)

In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the condition. Linda Wade, founder of the Mark Thomas Foundation and caregiver to her late husband who had sickle cell, joins the conversation to discuss her role in supporting the sickle cell community and her personal journey of advocacy. Support this podcast:⁠ https://anchor.fm/thesicklecellpodcast/support [https://anchor.fm/thesicklecellpodcast/support]

2023 SCAY Award Winners: Advocate of the Year + Digital Advocate of the Year (Feat. La'Shardae and Faith Adejei-Sarpong) - Pt. 2

Join host Maia Garrison as she speaks with passionate advocates shining a light on sickle cell disease. La'Shardae Scott, the 2022 SCAY Advocate of the Year, discusses her non-profit organization that bridges the gap by transitioning pediatric patients to adult sickle cell care. Faith Adjei-Sarpong, the Digital SCAY Advocate of the Year, shares how she inspires warriors through social media to live life fully despite having sickle cell disease. Prepare to be inspired by their dedication to raising awareness and empowering the sickle cell community. Find: La'shardae Scott Faith Adeji- Sarpong Instagram: @faiithooo @lashardae_scott or @scottcenteroh

2023 SCAY Award Winners: Community Partner + Youth Advocates of the Year (Feat. Holly John and Ayana Johnson) - Pt. 1

Join hosts Cassandra Trimnell and Maia Garrison as they hear from Holly John, Senior Director of Patient Advocacy at Agios Pharmaceuticals, recognized as the SCAY Community Partner of the Year for her groundbreaking work integrating patient voices into drug development and advocacy. Also, meet Ayana Johnson, the SCAY Youth Advocate of the Year, a high schooler who has launched a nonprofit, lobbied for legislation, and engaged with President Biden, inspiring fellow youth warriors. Prepare to be moved by their passion and dedication to revolutionizing sickle cell care. Find Ayana Johnson Instagram: _ayana_lee_ --- Support this: podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

Sickle Cell + Bone Marrow Transplant

Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise. A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://sicklecellconnect.com [https://sicklecellconnect.com⁠] --- Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support [https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support]