Ep 104 - Liaising with Megan Lenihan

Ep 104 - Liaising with Megan Lenihan

We are one week out from the WSA Convention and there's no better time to meet one of the newest staff members: Megan Lenihan! She joins Jen and Brendan to discuss her role as Family Resource Liaison and her passion for breaking down barriers for families to get the information and resources they need. She's been on the job for only a couple months, but she is already having a huge impact! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Ep 103 - Theater Inclusivity with Rachel Flamm

This week we channel our inner "theater kid energy" as we are joined by Rachel Flamm. She shares about how her love school led to her getting a degree in Early Childhood Education and Sociology. Then Producer Joel so they can nerd out over their love of acting and singing. Rachel wonderfully describes how her Williams syndrome gives her a leg up on understanding her characters! Big shout out to Omar Rudberg from Rachel - his #1 Fan! Joel shared info about the different apps he uses when working in theater. The first is Rehearsal Pro (https://rehearsal.pro/ [https://rehearsal.pro/]) which allows you to go paperless while working on your script. Second is Linelearner (https://alldayapps.wordpress.com/home/linelearner/ [https://alldayapps.wordpress.com/home/linelearner/]) which allows you to record all the lines in a scene and then blank out yours to help with memorization of your lines and cues. Finally there's Sheet Music Scanner (https://sheetmusicscanner.com/ [https://sheetmusicscanner.com/]) which allows you to snap a photo or upload a .pdf of a song and it will play the accompaniment digitally. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Ep 102 - Beyond Awareness Month with Bailey Stack

Today Jen and Brendan are joined by Bailey Stack, who reminds us that WS Awareness is a year-round endeavour! She shares how she found her voice and learned to trust herself when talking about her own disability and has become a mighty advocate educating families and professionals around the world using social media. Look like Brendan! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Ep 101 - The Family Network with Laura Spinney

We kick off a new century of podcasts with one of the newest additions to the WSA staff: Vice President of Programs Laura Spinney. Laura shares her extensive background working in disability advocacy and as a parent to her adult daughter with WS. She also gets into the details of the WSA's latest program: The Family Network. For more information on the Family Network, go to https://www.williams-syndrome.org/familynetwork [https://www.williams-syndrome.org/familynetwork] and if you're interested in applying for an Area Lead position or a State Lead position, click through to the position descriptions! Convention merch is available in the WSA Store! Go to https://shopwsa.org/ [https://shopwsa.org/] and get your swag now! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

Ep 100 - Training Doctors for Rare Disorders with Dr. Mo Helgren and Camilo Zeballos Carvajal

1-0-0!!!! For our 100th episode, we celebrated a milestone live on the Weekend for Williams Broadcast. Jen couldn't join us this time, so Joel sat in to help Brenden lead the conversation. Together they welcomed two wonderful guests: Dr. Mo Helgren of the Frank H. Netter School of Medicine and her student Camilo Zeballos Carvajal, a fellow musician and rare disease advocate. The discussion explored how the next generation of doctors is learning to care for people with rare conditions, and how a shared love of music can open the door to that work. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!