Caring for EoE (Eosinophilic Esophagitis)

Caring for EoE (Eosinophilic Esophagitis)

Podkast av Suzy York

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Les mer Caring for EoE (Eosinophilic Esophagitis)

Welcome to the Caring for EoE podcast where we’ll navigate Eosinophilic Esophagitis together. From diagnosis to daily living, feelings to finances, and restrictions to recipes, let’s create a community that Cares for EoE.

Alle episoder

14 Episoder
episode Ep 13: Diagnosed During College: Claire Johnson of EoE Digest Shares her Story artwork
Ep 13: Diagnosed During College: Claire Johnson of EoE Digest Shares her Story

Claire Johnson was diagnosed with EoE in college and shares her journey about how she navigated her new world away from home. Looking to inspire others who are facing similar challenges, she started EoE Digest [https://www.eoedigest.com/] to help herself and others embrace food restrictions with flare! Follow her on Instagram [https://www.instagram.com/eoedigest/] and Pinterest [https://www.pinterest.com/clairejohnsone/eoe-digest-eosinophilic-esophagitis-blog/]. Let's keep the conversation going at CaringforEoE@gmail.com.

19. jan. 2022 - 27 min
episode Ep 12: Empowering Nutritional Advice on Elimination Diets artwork
Ep 12: Empowering Nutritional Advice on Elimination Diets

Tara McCarthy is a pediatric dietician who specializes in working with patients and caregivers diagnosed with Eosinophilic Esophagitis (EoE) and celiac. She has a true passion for her work that helps people thrive in a food-focused world while contending with elimination diets. In this episode, she offers practical advice for daily living with food restrictions. It was such a pleasure talking with Tara - she's a true gift to our community! Let's keep the conversation going at CaringforEoE@gmail.com.

31. jan. 2020 - 29 min
episode Ep 11: EoE As A Teen - One Mother's Story artwork
Ep 11: EoE As A Teen - One Mother's Story

Lori's son was diagnosed with Eosinophilic Esophagitis (EoE) a year ago at the age of 13. Looking back, they contended with symptoms of it his entire life. Challenges with keeping food down as a baby, not wanting to eat as a toddler, and weight gain concerns were prevalent in his younger years. While the EoE diagnosis finally gave a name to their experiences, it was the beginning of their journey. Through a roller coaster of food eliminations, endoscopies, Neocate, and confusing allergy test results, they continue to navigate the world of EoE and the added complications it poses for a 14-year-old. Lori's devotion to her son and commitment to helping him find ways to take the lead in his care are inspiring! Hear more about their story in this episode and let's keep the conversation going at CaringForEoE@gmail.com [CaringForEoE@gmail.com].

26. des. 2019 - 49 min
episode Ep 10: One Man's Story of Finding EoE as an Adult artwork
Ep 10: One Man's Story of Finding EoE as an Adult

Adulting is hard enough. Add to it a mix of mysterious symptoms with little answers and the demands of work and life are amplified. Zach shares his story of finding his Eosinophilic Esophagitis and other diagnoses while serving in the military, the steps he's taken to deal with the disease, and the emotional struggles that came with it. Join me for this inspirational and informative episode - his mindset and outlook are truly impressive! Let's keep the conversation going at CaringForEoE@gmail.com [CaringForEoE@gmail.com].

12. nov. 2019 - 34 min
episode Ep 9: Celiac & EoE - One Family's Journey artwork
Ep 9: Celiac & EoE - One Family's Journey

In this episode, one of our community members shares her story about becoming an EoE family. Hannah is the mother of 3 1/2 year old twins and their journey started with a Celiac diagnosis. Join us as we explore topics from integrating elimination diets, navigating multiple diagnoses, and partnering with caretakers in supporting our children. As working moms, we also talk about the importance of support networks and getting the help needed for the entire family. Her optimism, mindfulness, and approach to empowering her children are inspiring! I was thrilled she reached out and hope you will, too! Contact caringforeoe@gmail.com [caringforeoe@gmail.com]and let's share your story.

22. okt. 2019 - 34 min
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