Candid Hearts: Conversations and CHD

Mezzion & FUEL-2: A New Chapter of Hope with John Pressor, Margaret Sarah Alexander, and Meg Didier

43 min · 27. april 2026
episode Mezzion & FUEL-2: A New Chapter of Hope with John Pressor, Margaret Sarah Alexander, and Meg Didier cover

Beskrivelse

Today, we’re joined by members of Mezzion, a pharmaceutical company focused on improving outcomes for those living with single ventricle heart conditions. In our conversation with John, Margaret Sarah, and Meg, we learn more about their mission to bring hope to the CHD community through their FUEL-2 study. FUEL-2 is exploring a potential new medication called udenafil, designed to help children and teens who have undergone the Fontan procedure. The study is looking at whether this treatment can improve energy levels, exercise capacity, and daily functioning, while also evaluating its safety. Join us as they share more about Mezzion’s work, the population they serve, and how studies like FUEL-2 could make a meaningful difference for the single ventricle community. https://mezzion.com/ [https://mezzion.com/] https://www.fuel2study.com/ [https://www.fuel2study.com/] https://www.linkedin.com/company/mezzion [https://www.linkedin.com/company/mezzion] If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

Kommentarer

0

Vær den første til å kommentere

Registrer deg nå og bli medlem av Candid Hearts: Conversations and CHD sitt community!

Prøv gratis

Prøv gratis i 60 dager

99 kr / Måned etter prøveperioden. · Avslutt når som helst.

  • Eksklusive podkaster
  • 20 timer lydbøker i måneden
  • Gratis podkaster

Alle episoder

67 Episoder

episode The Beginning of Adult Heart Camp- with Amy Erhart Cunningham and Meagan Houpt cover

The Beginning of Adult Heart Camp- with Amy Erhart Cunningham and Meagan Houpt

In this special episode, Amy and Meagan reflect on an unforgettable milestone—the very first Adult Heart Camp. Seventeen adults living with congenital heart disease traveled from multiple states to gather for a weekend built on something many of us have searched for our entire lives: connection. While heart camps have long existed for children with CHD, this weekend was created specifically for adults—a place where no one had to explain their scars, their medical history, or what it's like to live with a lifelong heart condition. Throughout the weekend, strangers became friends as stories were shared, laughter filled the campgrounds, and a community was formed through a shared understanding that only another CHDers can truly provide. Join us as we look back on the memories, the lessons, and the incredible impact of creating a space where adults with CHD could simply belong. This episode celebrates the power of community and reminds us that heart camp doesn't have to end in childhood—it can become something just as meaningful in adulthood. Until we meet again at Adult Heart Camp 2027, Amy Erhart Cunningham Founder/Host Please email amyc9235@gmail.com for more information about Heart Camp 2027 If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

6. juli 202619 min
episode The Murmur Mill: CHD Patients Can’t Have ‘Normal’ Lives cover

The Murmur Mill: CHD Patients Can’t Have ‘Normal’ Lives

In today’s Murmur Mill, we talk about the idea of living “normal” lives. While we’re fully aware that we have heart defects, we also know they don’t define who we are. The belief that people with CHD can’t live full, fulfilling lives is just that—a misconception. Many of us are thriving and living abundant lives. That doesn’t mean we don’t need support from time to time, but we’re not nearly as fragile as some people assume. Join us as we walk through this concept.   If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

22. juni 202631 min
episode Icing Smiles: Creating Joy, One Cake at a Time cover

Icing Smiles: Creating Joy, One Cake at a Time

Let’s talk about cake! Not just any cake, but cakes that bring smiles to some truly incredible people. Icing Smiles is an organization that connects volunteer bakers from across the country to create special cakes for children with chronic illnesses, their siblings, and families honoring a child who has passed. Join us as Chelsea shares her story and gives us a closer look at the heart behind Icing Smiles and the joy it brings to so many families.   https://www.icingsmiles.org [https://www.icingsmiles.org/] https://www.instagram.com/icingsmiles/ [https://www.instagram.com/icingsmiles/] https://www.tiktok.com/tag/icingsmiles [https://www.tiktok.com/tag/icingsmiles]  If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

25. mai 202634 min
episode Living Both Sides of CHD with Mia Johnson cover

Living Both Sides of CHD with Mia Johnson

Today, Mia joins us to share her incredibly unique story. Born with a congenital heart defect of her own, Mia has lived a healthy and vibrant life. When she and her husband decided to grow their family, she knew there were potential risks after  conversations with her medical team. At her 21-week fetal ultrasound, they learned that her son would also be born with a congenital heart defect. In this episode, Mia vulnerably walks us through her pregnancy journey — the emotions, the unknowns, and the strength it took to move forward with courage. She shares how she advocated for specialized care, made critical decisions for both herself and her baby, and prepared for a birth that would require a carefully coordinated medical team. Join us as we talk about generational CHD, maternal intuition, advocacy, and the powerful resilience of a heart mom who has lived both sides of the story — as a patient and now as a parent. If you or someone you know would like to be part of the podcast you can message both Meagan and Amy at:  candidhearts25@gmail,com Find our journey’s on Facebook: My HLHS Diary- Amy Erhart Cunningham My HLHS Story- Meagan Houpt

11. mai 202646 min