In Dreams I Stride: Adjusting to life with aggressive multiple sclerosis

In Dreams I Stride: Adjusting to life with aggressive multiple sclerosis

Podkast av Donna Brown

Podcast about learning to live with rapidly evolving severe multiple sclerosis. At the beginning of 2018, I was walking, albeit clumsily at times, but am now a full-time powerchair user requiring full-time care from my husband. I discuss adapting to the many changes multiple sclerosis has thrust upon us both and adjusting to this strange new world of living with a chronic illness and severe disability.

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4 Episoder
episode How Did I Get Diagnosed With Multiple Sclerosis? artwork
How Did I Get Diagnosed With Multiple Sclerosis?

My diagnosis with multiple sclerosis took a lot less time than I know many people have to wait and I'm grateful for that. Even so, it wasn't officially diagnosed until several months after it was first raised as a possibility. In this episode, I talk about that a little bit more and how diagnosis led to starting a disease modifying therapy but, despite it stopping new brain activity (inflammation and lesions), I continued to deteriorate. Visit my blog at indreamsistride.com [https://anchor.fm/dashboard/episode/indreamsistride.com] and email me at donna@indreamsistride.com [https://anchor.fm/dashboard/episode/donna@indreamsistride.com] if you have a question you’d like me to answer in the podcast. For the transcript of this episode, visit https://indreamsistride.com/podcast/multiple-sclerosis-diagnosis/ [https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/] --- Send in a voice message: https://anchor.fm/indreamsistride/message

17. nov. 2019 - 5 min
episode When Was the Onset of My Multiple Sclerosis? artwork
When Was the Onset of My Multiple Sclerosis?

I often get asked about when my multiple sclerosis began and the honest answer is, nobody is really too sure. The best answer seems to be 2016, when a noticeable decline in coordination began and a general feeling of being "not quite right". However, it would only become obvious that there was something more going on in January 2018, when 12 days of struggling to walk properly culminated in the fall that led to me being hospitalised and fast-tracked investigations that would uncover suspected multiple sclerosis... Visit my blog at indreamsistride.com [indreamsistride.com] and email me at donna@indreamsistride.com [donna@indreamsistride.com] if you have a question you’d like me to answer in the podcast. For the transcript of this episode, visit https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/ [https://indreamsistride.com/podcast/when-was-the-onset-of-my-multiple-sclerosis/] --- Send in a voice message: https://anchor.fm/indreamsistride/message

31. okt. 2019 - 4 min
episode An Open Letter to the Man Who Told Me I'd Get Over Multiple Sclerosis artwork
An Open Letter to the Man Who Told Me I'd Get Over Multiple Sclerosis

"I told you, “They believe I have multiple sclerosis.” And oh how your ears pricked up. Because you know everything about multiple sclerosis. You knew, for example, with a cast iron certainty I don’t think I’ve witnessed in anyone before, that I would get over it." Find the full post with images, video and readalong narration at bit.ly/getoverms (Please note, the narration is auto-generated to give people extra ways to access my blog. I appreciate this style might not work for everyone but hopefully offering this audio content will be of help to some!)

04. okt. 2019 - 4 min
episode Not Just CluMSy: Life with Multiple Sclerosis (or at least the story so far) artwork
Not Just CluMSy: Life with Multiple Sclerosis (or at least the story so far)

On 31/12/2017, I would take my first Couch to 5K run. Less than 2 weeks later, I was struggling to walk properly. As of October 2019, I am a full timer powerchair user, requiring full time care. Learn about my multiple sclerosis journey so far. Find the full post with images, video and readalong narration at http://bit.ly/clumsyms (Please note, the narration is auto-generated to give people extra ways to access my blog. I appreciate this style might not work for everyone but hopefully offering this audio content will be of help to some!)

29. sep. 2019 - 14 min
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