Mogil's Mobcast-A Scleroderma Chat

As many of you know, I love to move and I’m always eager to share that energy. But I also understand that for some, especially those living with scleroderma, exercising can feel overwhelming. That’s why I’m thrilled to be joined by Will Gregory, a physiotherapist with over 20 years of experience working with the scleroderma community. Will shares powerful insights on why fatigue, not pain, is often the biggest barrier to physical activity. In this episode, he offers practical, doable strategies to stay active, including exercises for the hands and mouth. Whether you’re just starting out or looking for new ideas, you’ll find something valuable here.

Today, we have an inspiring story of resilience, purpose, and advocacy. Our guest is Perry Bray, he was diagnosed in 2018 with diffuse systemic sclerosis, Perry faced life-altering changes, including stepping away from his beloved football and ministry work. But rather than let the diagnosis define him, Perry chose to redefine what it means to live with this rare disease. He became a powerful voice in the scleroderma community, joining the Renew Program and the Peer Mentor Program through the University of Michigan. He also shares his experiences and insights through his personal blog, creating a space of hope and connection for others. Perry’s journey is one of courage, adaptation, and impact and today, we get to hear it in his own words.

When you hear the term palliative care, what comes to mind? I’ll admit I used to think it meant something very different. But today’s guest, Dr. Shannon Herndon, helped reshape my understanding. Dr. Herndon joins us to talk about how palliative care can support scleroderma warriors not just at the end of life, but throughout the journey of living with this disease.You may remember a recent survey circulating in our community Dr. Herndon was behind it. The goal? To better understand how palliative care can be woven into the fabric of scleroderma care. We had a thoughtful conversation, and I’m excited to share it with you.

Today’s guest is Carolyn Haeler, the founder of a delicious gluten-free cookie brand, called MIGHTYLICIOUS and someone with an inspiring story to tell.Carolyn lives with celiac disease, and in this episode, she shares her journey: from navigating the challenges of her diagnosis to the surprising lessons she learned along the way. Her desire for a truly good gluten-free cookie led her to create her own and eventually, her own line of cookies and now even gluten-free flour. I learned so much not just about celiac disease, but also about what it takes to go from baking in your kitchen to running a commercial bakery. Spoiler: it’s more complicated than you think.And yes, the cookies are fantastic. Enjoy the episode!

What an incredible milestone! What began as a simple idea during the pandemic, something to keep me busy in retirement and a way to give back to the scleroderma community has grown into something truly meaningful. I’ve been deeply moved by how warmly this podcast has been received. In this special episode, I want to honor that spirit by reconnecting with the incredible scleroderma warriors who generously shared their stories. Let’s check in and see how they’re doing. Let’s begin.