EP 33 - Four innovations to bridge the evidence-practice gap in Parkinson's disease allied health guidelines

EP 33 - Four innovations to bridge the evidence-practice gap in Parkinson's disease allied health guidelines

🎙️ We’re back with episode 33 of Parkinson Weekly, hosted by Prof. Bas Bloem. In Episode 33 of Parkinson Weekly, Prof. Bas Bloem discusses a newly published multidisciplinary allied health guideline for people living with Parkinson’s disease. Published in Parkinsonism and Related Disorders, the guideline introduces an innovative, problem-orientated approach to Parkinson’s care, moving beyond traditional single-discipline recommendations. Instead, it brings together input from physiotherapists, occupational therapists, speech-language therapists, dieticians, and other allied health professionals to address complex symptoms such as falls, fatigue, swallowing difficulties, constipation, breathing problems, and sexual health concerns. Bas highlights four key innovations: its multidisciplinary structure, decision support based on problems raised by people with Parkinson’s, full accessibility for patients themselves, and automated annual updates to ensure the guidance remains aligned with the latest evidence. This episode explores why this Dutch guideline may serve as a template for future Parkinson’s guidelines worldwide, supporting more collaborative, person-centred, and up-to-date care. A forward-looking episode on how multidisciplinary guidance could help shape the next era of Parkinson’s disease management. Read the full article here: https://pubmed.ncbi.nlm.nih.gov/42115018/ [https://pubmed.ncbi.nlm.nih.gov/42115018/] Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com [parkinsonweekly@gmail.com] – we’d love to hear from you.

EP 32 - The Parkinson Weekly Helpdesk

🎙️ We’re back with episode 32 of Parkinson Weekly, hosted by Prof. Bas Bloem. In Episode 32 of Parkinson Weekly, Prof. Bas Bloem returns with the third Parkinson Weekly Helpdesk, answering three insightful questions from listeners. This episode explores the fascinating relationship between art, dopamine, creativity, and brain function, including how art may support wellbeing in Parkinson’s disease and why future clinical trials could help define its therapeutic potential. Bas also discusses altered perception in Parkinson’s, including hearing, vision, proprioception, posture awareness, and how practical tools such as visual feedback may help support therapy. The episode concludes with an open and thoughtful discussion on lifespan in Parkinson’s disease. Bas explains why honest conversations about prognosis, quality of life, falls, swallowing, infections, and multidisciplinary care are essential, while also highlighting the positive impact that specialist support and services such as ParkinsonNet can have on outcomes. A wide-ranging Helpdesk episode covering creativity, perception, realistic hope, and practical ways to support better living with Parkinson’s disease. Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com [parkinsonweekly@gmail.com] – we’d love to hear from you.

Ep 31 - The Unseen Burden: Uncovering Shame and Its Determinants in Parkinson's Disease

🎙️ We’re back with episode 31 of Parkinson Weekly, hosted by Prof. Bas Bloem. In Episode 31 of Parkinson Weekly, Prof. Bas Bloem explores an often overlooked but deeply important aspect of Parkinson’s disease: shame. Discussing a thought-provoking new paper published in Movement Disorders Clinical Practice, Bas examines how feelings of shame can significantly affect the lives of people living with Parkinson’s. The episode highlights findings from a Swiss study investigating the relationship between shame, anxiety, guilt, dyskinesias, depression, apathy, and overall quality of life in Parkinson’s disease. Bas reflects on why this under-recognised issue deserves far greater attention in clinical practice and everyday conversations. Importantly, the discussion goes beyond medication, emphasising the value of open communication, awareness, and non-pharmacological support in helping reduce the burden of shame for people with Parkinson’s and their families. A thoughtful and compassionate episode shedding light on the emotional realities of living with Parkinson’s disease — and why acknowledging these experiences is an essential step toward better care. You can read the full article here: https://pubmed.ncbi.nlm.nih.gov/40384367/ [https://pubmed.ncbi.nlm.nih.gov/40384367/]  Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com [parkinsonweekly@gmail.com] – we’d love to hear from you.

EP 30 - Tolerability and efficacy of full-body head-up tilt sleeping in Parkinson's disease and multiple system atrophy

🎙️ We’re back with episode 30 of Parkinson Weekly, hosted by Prof. Bas Bloem. In Episode 30, Prof. Bas Bloem explores orthostatic hypotension — the significant drop in blood pressure that can occur when standing up, commonly affecting people with Parkinson’s disease and multiple system atrophy. This debilitating condition can lead to fainting, falls, fatigue, and the so-called “twilight zone” of brain fog. The episode discusses new research published this week in NPJ Parkinson’s Disease investigating “heads-up tilt sleeping” — sleeping with the bed elevated at an angle — as a simple, non-pharmacological treatment approach. Prof. Bloem explains how this technique may help improve both daytime blood pressure drops and nighttime hypertension, potentially offering a rare treatment strategy that addresses both problems simultaneously. Drawing on findings from the international HEADS-UP Parkinson study, the episode examines the science behind this old clinical observation, practical ways patients can try the intervention themselves, and why this could represent an important advance in managing autonomic dysfunction in Parkinson’s disease. You can read the full article here: https://pubmed.ncbi.nlm.nih.gov/42143029/ [https://pubmed.ncbi.nlm.nih.gov/42143029/] Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com [parkinsonweekly@gmail.com] – we’d love to hear from you.

EP 29 - The Parkinson Weekly Helpdesk

🎙️ We’re back with the twenty-ninth episode of Parkinson Weekly, hosted by Prof. Bas Bloem — and the second instalment of the Parkinson Weekly Helpdesk. In this episode, Prof. Bloem answers three new listener questions covering some of the most talked-about topics in Parkinson’s care. He explores the role of diet and the gut, offering practical advice on nutrition, constipation, and how these may impact medication effectiveness. The episode also dives into Mucuna pruriens — what it is, how it compares to standard levodopa therapy, and when it may (or may not) be appropriate. Finally, Prof. Bloem discusses cognitive training, addressing whether brain exercises can help manage symptoms or slow cognitive decline. As always, the Helpdesk combines evidence with real-world clinical insight — helping to cut through conflicting advice and focus on what truly matters for patients. Have a question you’d like Bas to answer in a future episode? Email us at parkinsonweekly@gmail.com [parkinsonweekly@gmail.com] – we’d love to hear from you.