A Body Rebels: A Chronic Illness Podcast

The Waiting Room Anxiety Nobody Talks About: Chronic Illness Test Results and Relief

8 min · 19. mai 2026
episode The Waiting Room Anxiety Nobody Talks About: Chronic Illness Test Results and Relief cover

Beskrivelse

Waiting for medical test results with chronic illness can feel like sitting through an awards show you never agreed to attend. Every pause carries weight, every glance feels loaded, and your mind fills in the blanks before anyone speaks. Living with sarcoidosis and heart failure means learning how to exist in that space between testing and knowing. But sometimes, the outcome shifts. Sometimes your body gives something back. This is a story about that moment when fear loosens its grip, even briefly, and you’re reminded that relief, even temporary, still matters. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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Alle episoder

88 Episoder

episode Kindness in Healthcare and Chronic Illness Care cover

Kindness in Healthcare and Chronic Illness Care

In this episode, I’m talking about kindness in healthcare, bedside manner, chronic illness care, and why the emotional side of medical appointments can follow me long after I leave the room. Living with sarcoidosis means I’ve spent years around scans, charts, vitals, instructions, and waiting rooms, but I also remember tone, patience, eye contact, and small moments of steadiness. I’m thinking through why basic kindness is not a luxury in medical care, especially when my body is already tired before the appointment begins. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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The Fake Chinese Song That Became a Chronic Illness Poem

In this episode, I’m talking about a silly song I sing to my dogs, a language I don’t actually speak, and the strange AI surprise that came back when I finally let technology listen. I’m reflecting on ancestry, imagination, chronic illness, memory, and the little rituals that sneak into daily life when my body is tired but my mind is still wandering. It starts with puppies, a tug toy, and nonsense sounds, but it opens a door I didn’t expect. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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episode Childhood Memories, Chronic Illness, and the Cousin I Never Forgot cover

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In this episode, I talk about my cousin Jenny, a childhood memory I’ve carried for more than fifty years, and the way grief can return through laughter before it ever knows what to do with itself. I’m reflecting on family distance, ovarian cancer, chronic illness, and what it feels like when my body keeps me far from a goodbye I wish I could attend. It’s about cousins, memory, regret, love, and the strange little details that keep people alive inside us. This podcast is narrated using an AI voice. The words, reflections, and lived experience are my own. Contact A Body Rebels [https://www.abodyrebels.com/] More info about Sarcoidosis and to donate toward research: The Foundation For Sarcoidosis Research  [https://www.stopsarcoidosis.org/]

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