Episode 18 - Rare Disease Day - Ataxia Telangiectasia

Episode 20 - Dear Mom

In this episode, I chat with Jaycie right after she got back from the Dear Mom conference in southern California! Jaycie is the mom of a child with Down syndrome, and she got to take a weekend to meet with other disability parents, meet some of our fav influencers in this space, and connect. Listen to us recap, name drop, and talk about her takeaways from the conference. You can find Jaycie on Instagram @mrs.conley_213 at and on Tiktok at @jaycieconley Follow the podcast on Tiktok, Instagram, Youtube, and Facebook @theinclusioneffect. Podcast art by Sara Hast Podcast music by Cameron Cornell

Episode 19 - Adopting and Advocating

Join me and guest Cameron Cornell as we discuss disability advocacy, the journey of adopting children with complex needs, and the importance of intersectional support and representation in media. Our conversation covers medical challenges, advocacy, and the joys and grief of parenting children with special needs. Find Cameron @letmeflyshow on Facebook, Instagram, and Tiktok. The GoFundMe for the production of Let Me Fly can be found here: gofundme.com/f/let-me-fly-broadway-recording-for-autism-musical/cl/o?attribution_id=sl:991af33b-d27d-4f5b-b255-e269973db3da&lang=en_US&ts=1772029277&utm_campaign=man_sharesheet_dash&utm_content=amp17_te&utm_medium=customer&utm_source=copy_link [http://gofundme.com/f/let-me-fly-broadway-recording-for-autism-musical/cl/o?attribution_id=sl:991af33b-d27d-4f5b-b255-e269973db3da&lang=en_US&ts=1772029277&utm_campaign=man_sharesheet_dash&utm_content=amp17_te&utm_medium=customer&utm_source=copy_link] Follow the podcast on Tiktok, Youtube, Instagram, and Facebook @theinclusioneffect Podcast music by Cameron Cornell Podcast artwork by Sara Hast

Episode 18 - Rare Disease Day - Ataxia Telangiectasia

This week, in honor of Rare Disease Day on February 28, I talked with a good friend and mom of a rare disease warrior, Marissa. Our conversation covers Marissa's journey with her daughter Lavender, who has been diagnosed with a rare disease called ataxia telangiectasia (AT). We delve into the challenges of diagnosis, the emotional impact on the family, the rareness of AT, community support, research efforts, and the complexity of the disease. Follow Marissa on Instagram @thelavender_path, Tiktok @the.lavender.path, and Facebook at The Lavender Path. www.atcp.org [http://www.atcp.org] Follow the podcast on Instagram, Tiktok, Facebook, and Youtube @theinclusioneffect. Podcast art by Sara Hast Podcast music by Cameron Cornell

Episode 17 - Raising Cool Kids in Uncool Schools

In this episode, I talk Ashley from Virgo Designs about the challenges and triumphs of disability advocacy, focusing on Ashley's personal journey with her son who has cerebral palsy. We dive into the importance of centering achild's needs in education, the impact of legislation on disability rights, and the role of community support. Find Ashley on Instagram at @virgo.design [http://virgo.design].atx Follow the podcast on Instagram, Tiktok, Youtube, and Facebook at @theinclusioneffect Podcast art by Sara Hast Podcast intro music by Cameron Cornell

Episode 16 - Love, Buddies, and Inclusion

This week I talked with Sarah Robinson about the the experience of receiving a birth diagnosis of twins with Down syndrome, the dual diagnoses of Down syndrome and autism, the implementation of the Buddy Club respite program, and the creation of an inclusive church community. Follow Sarah on Instagram and Tiktok @down.with.the.robinsons, and follow the Buddy Club on Instagram and Facebook @buddyclubrespite Follow the podcast on Instagram, Tiktok, and Facebook @theinclusioneffect Intro song produced and recorded by Cameron Cornell Podcast art by Sara Hast