Diagnosing Dementia During Covid-19

Episode 7: The Final Tale

In this bonus episode of the series, the project’s lived experience group, BUDDs, and the research team discuss co-producing the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: patient and practitioner perspectives'. The team discuss the co-produced approach of the project, share their highlights of working together, and give some insight into the benefits and challenges of co-producing research. Joining this episode are BUDD members, Louise, Margaret, Barry, Elaine and Claire, and researchers from the University of Edinburgh, Lindsay Kinnaird (also presenting), Denise Munro, Dr Tom Russ and Dr Rosie Ashworth. Dr Tom Russ is also an Old Age Psychiatrist based in Edinburgh, Director of the Alzheimer Scotland Dementia Research Centre, an Honorary Clinical Senior Lecturer at the University of Edinburgh and Research Champion for the NHS Scotland Neuroprogressive and Dementia Network. Dr Rosie Ashworth also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in co-producing research in collaboration with people with lived experience of dementia. For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+7A+The+Final+Tale/1_49u8d0z9 This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid. You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid [https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid] Follow us: Twitter on @AlzScotDRC Facebook https://www.facebook.com/AlzScotDRC [https://www.facebook.com/AlzScotDRC] For dementia support services contact: Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport [https://www.alzscot.org/findsupport]  Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/getsupport [https://www.alzheimers.org.uk/get-support]  MECOPP: https://www.mecopp.org.uk/contact-us [https://www.mecopp.org.uk/contact-us]  Dementia UK: 0800888 6678/ https://www.dementiauk.org/ [https://www.dementiauk.org/] If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/ [https://www.joindementiaresearch.nihr.ac.uk/]

Episode 6: The Summing Up Tale

Following on from episode five, ‘The Results Tale’, this episode discusses the findings from research which investigated changes to dementia diagnosis and assessment in the UK during the Covid-19 pandemic. The team explore what the results highlight for dementia diagnoses, including the benefits and challenges of using digital technology when diagnosing dementia. Joining this episode are BUDD members, Louise, Margaret, Barry, Elaine and Claire and researchers from the University of Edinburgh, Lindsay Kinnaird (also presenting), Denise Munro, Dr Tom Russ and Dr Rosie Ashworth. Dr Tom Russ is also an Old Age Psychiatrist based in Edinburgh, Director of the Alzheimer Scotland Dementia Research Centre, an Honorary Clinical Senior Lecturer at the University of Edinburgh and Research Champion for the NHS Scotland Neuroprogressive and Dementia Network. Dr Rosie Ashworth also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in co-producing research in collaboration with people with lived experience of dementia. For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+6A+Diagnosing+Dementia+During+Covid-19+Podcast/1_3578x2wp   This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid. You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid [https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid] Follow us on: Twitter on @AlzScotDRC Facebook https://www.facebook.com/AlzScotDRC [https://www.facebook.com/AlzScotDRC] For dementia support services contact: Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport [https://www.alzscot.org/findsupport]  Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support [https://www.alzheimers.org.uk/get-support]  MECOPP: https://www.mecopp.org.uk/contact-us [https://www.mecopp.org.uk/contact-us]  Dementia UK: 0800 888 6678/ https://www.dementiauk.org/ [https://www.dementiauk.org/] If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/ [https://www.joindementiaresearch.nihr.ac.uk/]

Episode 5: The Results Tale

Researchers, Lindsay Kinnaird and Dr Rosie Ashworth, share the results of the Diagnosing Dementia During Covid-19 study. This project investigated the changes to dementia diagnosis and assessment during the Covid-19 pandemic. Lindsay and Rosie are both researchers on the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives' at the University of Edinburgh. Rosie also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in patient and public involvement and co-producing research in collaboration with people with lived experience of dementia. For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+5+-+The+Results+Tale/1_p9x741ot  This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid. You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid [https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid] You can also follow us on: Twitter on @AlzScotDRC Facebook https://www.facebook.com/AlzScotDRC [https://www.facebook.com/AlzScotDRC] For dementia support services contact: Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport [https://www.alzscot.org/findsupport] Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support [https://www.alzheimers.org.uk/get-support] MECOPP: https://www.mecopp.org.uk/contact-us [https://www.mecopp.org.uk/contact-us] Dementia UK: 0800 888 6678/ https://www.dementiauk.org/ [https://www.dementiauk.org/] If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/ [https://www.joindementiaresearch.nihr.ac.uk/]

Episode 4: The Co-production Tale

Researchers Lindsay Kinnaird and Rosie Ashworth discuss co-producing research and co-producing with people with lived experience of dementia.  Lindsay and Rosie are both researchers on the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives' at the University of Edinburgh . Rosie also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in patient and public involvement and co-producing research with people with lived experience of dementia. BUDDs, the co-production group for research investigating dementia diagnosis during Covid-19, also share their experiences of co-production. For a subtitled version of this episode please visit: https://edin.ac/3MCTETw  This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid. You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid [https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid] You can also follow us on: Twitter on @AlzScotDRC Facebook https://www.facebook.com/AlzScotDRC [https://www.facebook.com/AlzScotDRC] For dementia support services contact: Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport [https://www.alzscot.org/findsupport] Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support [https://www.alzheimers.org.uk/get-support] MECOPP: https://www.mecopp.org.uk/contact-us [https://www.mecopp.org.uk/contact-us] Dementia UK: 0800 888 6678/ https://www.dementiauk.org/ [https://www.dementiauk.org/] If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/ [https://www.joindementiaresearch.nihr.ac.uk/]

Episode 3: The Clinician's Tale

Dr Tom Russ, Dr Lucy Stirland and Dr Catherine Pennington discuss the diagnosis of dementia and the changes to diagnosis during Covid-19 restrictions. Dr Catherine Pennington is a Consultant Neurologist who works in the memory clinic in Edinburgh and in NHS Forth Valley. Catherine is also Honorary Senior Clinical Lecturer at the University of Edinburgh. Dr Lucy Stirland is an old age psychiatrist in training who works in NHS in Lothian but often moves around Health Boards. At the time of the discussion, Lucy worked in NHS Borders. Lucy is also an epidemiological researcher at the University of Edinburgh. Dr Tom Russ is an old age psychiatrist in Edinburgh and Director of the Alzheimer Scotland Dementia Research Centre at the University of Edinburgh. Tom is also the Principal Investigator for the research project: ‘Sharing the diagnosis of dementia in the post-Covid clinic: Patient and Practitioner Perspectives’. This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid. You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid [https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid] You can also follow us on: Twitter on @AlzScotDRC Facebook https://www.facebook.com/AlzScotDRC [https://www.facebook.com/AlzScotDRC] For dementia support services contact: Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport [https://www.alzscot.org/findsupport] Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/get-support [https://www.alzheimers.org.uk/get-support] MECOPP: https://www.mecopp.org.uk/contact-us [https://www.mecopp.org.uk/contact-us] Dementia UK: 0800 888 6678/ https://www.dementiauk.org/ [https://www.dementiauk.org/] If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/ [https://www.joindementiaresearch.nihr.ac.uk/]