Linked Together

Podcast af National Genetics Education and Family Support Center

engelsk

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Delving into honest and transparent discussions, Molly and the season’s co-hosts dig into the issues that affect family leaders, including mental health, family dynamics, and the family leadership journey, and examines them from multiple angles to better understand what it means to be family leaders in driving systems change. Expect deep dives into everything from why “I could never do what you do” connotates choice to the complicated social, cultural, and family dynamics of parenting a child with special healthcare needs to the joy and love found in the unexpected journey. For resources and more information go to https://nationalfamilycenter.org This work is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of the work of the National Genetics Education and Family Support Program. The contents are those of the participants and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government.

Alle episoder

15 episoder

Convening

In this episode, host Natasha Bonhomme and guests Vicki Hunting and Marianna Raia discuss the power of convening and bringing diverse groups together to drive system change. By fostering collaboration and dialogue among stakeholders, we can create innovative solutions and build more resilient, inclusive systems. Join us as we explore inspiring examples of how collective action leads to meaningful, lasting change.

28. maj 2024 - 25 min

Authentic Partnership

In this episode, host Marianna Raia and guests Natasha Bonhomme and Molly Martzke explore the transformative impact of authentic partnerships in the genetic healthcare delivery system. By fostering genuine collaboration between families, healthcare providers, and communities, we can create more inclusive, effective, and patient-centered care. Join us to hear expert insights and success stories on how these partnerships are driving meaningful system change.

28. maj 2024 - 34 min

Importance of the Lived Experience

In this episode, host Bailey Perez and guests Molly Martzke and Marianna Raia highlight the crucial role of lived experiences and storytelling in driving system change. By sharing personal narratives, we can illuminate systemic issues and inspire actionable solutions. Join us as we delve into powerful stories that demonstrate how lived experiences can catalyze meaningful, lasting transformation.

28. maj 2024 - 27 min

Data

In this episode, host Vicki Hunting and guests Bailey Perez and Natasha Bonhomme explore the pivotal role of data and the importance of asking the right questions to drive system change. By leveraging accurate data and insightful inquiry, we can uncover root causes and design effective, sustainable solutions. Join us as we discuss how data-driven approaches are transforming systems and creating impactful change.

28. maj 2024 - 15 min

Supporting Family Engagement

In this episode, our host Molly Martzke and guests Bailey Perez and Vicki Hunting delve into the critical importance of family engagement in revolutionizing the genetic healthcare delivery system. We discuss how active family involvement can lead to more patient-centered, equitable, and effective healthcare practices. Tune in to hear expert insights and real-life examples of how supporting family engagement can drive significant and lasting system change in genetic healthcare.

28. maj 2024 - 20 min

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