Cover image of show The Starry-Eyed Podcast®

The Starry-Eyed Podcast®

Podcast by Williams Syndrome Association

English

Personal stories & conversations

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About The Starry-Eyed Podcast®

Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

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100 episodes

episode Ep 97 - Lifting Lives with Dr. Elisabeth Dykens and Dr. Elizabeth Roof artwork

Ep 97 - Lifting Lives with Dr. Elisabeth Dykens and Dr. Elizabeth Roof

Awareness Month keeps rolling on this week with two very special guests: Dr. Elizabeth Roof and Dr. Elisabeth Dykens from Vanderbilt Kennedy Center. They are the driving force behind the Academy of Country Music Lifting Lives [https://vkc.vumc.org/vkc/services/acm_music_camp/] music camp in Nashville which has been changing the lives of adults with WS as well as some of Country Music's biggest stars for over 20 years.  They join their old friend Brendan (along with Producer Joel filling in for Jen) to discuss the relationship between WS, anxiety, and music. When the first two team up, it's often music as the panacea for splitting them up again. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

12 May 2026 - 37 min
episode Ep 96 - Awareness Month & Acting with Kara Jackson artwork

Ep 96 - Awareness Month & Acting with Kara Jackson

Happy Williams Syndrome Awareness Month!! We're kicking off this great month with the wonderful Kara Jackson. She joins Jen and Brendan to discuss her love of acting and her upcoming production of The Sound of Music at Backlight Productions [https://backlightproductions.org/]. As someone who traveled around a lot when she was a kid as part of a military family, Kara speaks openly about the different types of anxiety one can experience and how it's important to power through and get that applause! As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

5 May 2026 - 40 min
episode Ep 95 - Awareness Month Prep with Brendan and Joel artwork

Ep 95 - Awareness Month Prep with Brendan and Joel

It's a quickie episode this week as Brendan (who is literally tiptoeing through the tulips) and Joel prepare for May - which is, of course, Williams Syndrome Awareness Month. You can find resources to share with others in the WSA Awareness Month Toolkit [https://www.williams-syndrome.org/2026-awareness-month-toolkit].  We're also joined from the tulip field by Anne Lemieux to discuss her new book of fiction "See the Music, Hear the Light." Find out more and purchase your copy at seethemusichearthelight.com [https://seethemusichearthelight.com/]. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

28 Apr 2026 - 13 min
episode Ep 94 - The Dream Team with Amy Berg artwork

Ep 94 - The Dream Team with Amy Berg

This week we're joined by Amy Berg from just outside Philly on the Jersey side. Amy is an OG person with WS (diagnosed before there was genetic testing) and has seen this community grow and change over the years. She spends a lot of time with her friends on The Dream Team, which is a group of our older community members. They frequently get together online, travel together, and hang out together at the convention! Amy and Brendan both were in attendance at the Armellino Center of Excellence for Williams Syndrome at the University of Pennsylvania and CHOP this past weekend to see a talk given by future podcast guest Mark Levin and Sarah Schaefer on Sudden Cardiac Deaths in WS. They share their takeaways from a very informative presentation. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK [https://shareasale.com/r.cfm?b=1024874&u=3551571&m=72573&urllink=&afftrack=]and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

21 Apr 2026 - 27 min
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En fantastisk app med et enormt stort udvalg af spændende podcasts. Podimo formår virkelig at lave godt indhold, der takler de lidt mere svære emner. At der så også er lydbøger oveni til en billig pris, gør at det er blevet min favorit app.
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