Acute Lymphoblastic Leukemia Mamma Care

Season 3 Ep. 14- Leukemia Survivor, Runner & Fundraiser- Lauren Silver

I’m so honored and excited to have Lauren Silver join me on the podcast! She is truly a Superwoman and her spirit and enthusiasm for helping others, all things running all the while fundraising for the Leukemia Lymphoma Society is an inspiration. Join Lauren and I, as we dive into all the things! She shares with us her survivor journey with AML (Acute Myeloid Leukemia) when she was young. She shares with us how she’s raised thousands of dollars for LLS while taking part in running many marathons and half marathons with Team in Training over the past decade. She’s down to the final week of her fundraising for LLS Man & Women of the Year. Her team Breaking Barriers is striving to bring her to the finish line on June 11th with the title Women of the Year and she’s striving to earn that Women of the Year title by collecting the most funds for LLS research and family support. Links: https://www.lls.org/ [https://www.lls.org/] https://www.mwoy.org/ [https://www.mwoy.org/] https://www.teamintraining.org/ [https://www.teamintraining.org/] https://www.teamintraining.org/search-events [https://www.teamintraining.org/search-events] Donate Directly to: https://pages.lls.org/mwoy/ma/ma21/lsilver [https://pages.lls.org/mwoy/ma/ma21/lsilver] Check out the Lauren’s Auction: https://www.32auctions.com/breakingbarriersforlls [https://www.32auctions.com/breakingbarriersforlls] Connect with Lauren directly: https://www.instagram.com/laurenbsilver/ [https://www.instagram.com/laurenbsilver/] https://www.facebook.com/lauren.silver.106 [https://www.facebook.com/lauren.silver.106] Clubhouse: https://www.joinclubhouse.com/ [https://www.joinclubhouse.com/] https://www.allmammacare.com/ [https://www.allmammacare.com/] A.L.L. Mamma Care Private Facebook Group [https://www.facebook.com/groups/411365156405705] Instagram: @A.L.L.MAMMACARE [https://www.instagram.com/a.l.l.mammacare/] This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacy

Season 3 Ep. 13- End of Treatment Celebration!

This week on the podcast my husband joins and we catch you guys up on Ollie’s end of oral treatment and how we celebrated with family far and near! We rave about Icing Smiles and how they made his 4th birthday party EXTRA special! And we touch upon some positive improvements now that our son is finished with his treatment. We hope you laugh with us as we navigate parenthood despite being sleep deprived, our love for online shopping, and how as a family we’re adjusting to life after our son’s treatment and all the emotions that go with it while keeping our sense of humor in the process. I felt it was important to document this part in our journey because I often flash back to the early days in our son’s treatment and the deep, dark feeling of hopelessness. This is the episode that I wish I had access to back then. My wish is that someone, somewhere finds this and it’s able to restore a glimmer of hope in their darkest hour. Links: https://www.icingsmiles.org/ [https://www.icingsmiles.org/] https://www.instagram.com/icingsmiles/ [https://www.instagram.com/icingsmiles/] https://www.instagram.com/lia.bakes/ [https://www.instagram.com/lia.bakes/] https://www.hallmark.com/ornaments/keepsake-ornaments/cancer-survivors-bell-metal-ornament-benefitting-cancer-research-at-mayo-clinic-1999QHX4102.html [https://www.hallmark.com/ornaments/keepsake-ornaments/cancer-survivors-bell-metal-ornament-benefitting-cancer-research-at-mayo-clinic-1999QHX4102.html] https://www.allmammacare.com/ [https://www.allmammacare.com/] A.L.L. Mamma Care Private Facebook Group [https://www.facebook.com/groups/411365156405705] Instagram: @A.L.L.MAMMACARE [https://www.instagram.com/a.l.l.mammacare/] This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacy

Season 3 Ep. 12- Edit Keshishyan- Momcologist & Occupational Therapist

I am so grateful to have met some amazing Momcologists during my son’s treatment. My next guest, Edit Keshishyan is a fellow Momcologist and an Occupational Therapist. We’ve known each other for the last year and a half. I was so happy when the stars aligned and she joined me on the podcast to talk about her amazing daughter, Emma, and how Edit was able to help her through some of the toughest times during her treatment for Leukemia. With over 10 years of experience as an Occupational Therapist, Edit founded her company, Achieving Milestones Therapy, not too long ago. In this episode Edit shares with us Emma’s story and all the amazing things that OT can do to help children during treatment.  We talk about the many side effects of the chemotherapy our children had to take and we take a deep dive into the multiple facets of OT. So settle in as we unpack the multitude of ways to help your child during treatment. We touch upon everything from sensory play, to ways to strengthen muscles, increase your child’s gross motor skills (large muscles), their fine motor (smaller muscles) and strengthen their vision. We even get a special celebrity appearance from Emma as she drops in for a little bit to say “hi” and show me her missing teeth and wiggly tooth! Edit Keshisyan Aghazarian- Momcologist & Occupational Therapist Find her on Instagram- @editkeshishyan @achievingmilestonestherapy (Website in the works) https://www.instagram.com/achievingmilestonestherapy/?hl=en [https://www.instagram.com/achievingmilestonestherapy/?hl=en] Los Angeles, CA AchievingMilestonesTherapy@gmail.com [AchievingMilestonesTherapy@gmail.com] Phone: 818-288-3334 Recommended Links/Apps: ABC Mouse [https://www.abcmouse.com/abc/?8a08850bc2=T1148250950.1621217908.3024] PBS Kids [https://pbskids.org/] Kidtopia [https://www.kidtopia.info/] Dexteria VMI Visual-Motor Integration Skills [https://apps.apple.com/us/app/id994021869?ign-mpt=uo%3D4] Match it - Find the matching [https://apps.apple.com/us/app/match-it-find-the-matching/id1340458852] Match 3D - Matching Puzzle Game [https://play.google.com/store/apps/details?id=com.loop.match3d&hl=en_US&gl=US] Sort It 3D [https://play.google.com/store/apps/details?id=com.loop.match3d&hl=en_US&gl=US] Tangle Master 3D [https://play.google.com/store/apps/details?id=com.rollic.tanglemaster3D&hl=en_US&gl=US] https://www.allmammacare.com/ [https://www.allmammacare.com/] A.L.L. Mamma Care Private Facebook Group [https://www.facebook.com/groups/411365156405705] Instagram: @A.L.L.MAMMACARE [https://www.instagram.com/a.l.l.mammacare/] This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacy

Season 3 Ep. 11- Momcologist Tricia Campero

This week I interviewed Tricia Campero, a fellow momcologist and a woman who has been by my side from the very beginning of my son’s diagnosis. Tricia’s son, Christian was diagnosed with T-Cell Leukemia when he was 5 years old. She shares with us all the ins and outs of his journey back to health. Everything from how she sensed something was not right, to his diagnosis, to his 3 years of treatment including radiation, and they’re experience with Make a Wish and annual family vacation at Hole in the Wall camp in Connecticut. She offers advice for families that are in treatment and takes us into what school was like for Christian coming off treatment. This episode is a special one because Christian joined us for a little bit too! There are no words to express how deeply I am appreciative of Tricia’s friendship. And I know we are connected for life! Links: Meet Christian and Tricia- https://www.facebook.com/christiancourage2012 [https://www.facebook.com/christiancourage2012 ] https://www.holeinthewallgang.org/ [https://www.holeinthewallgang.org/] https://wish.org/ [https://wish.org/] https://www.allmammacare.com/ [https://www.allmammacare.com/] A.L.L. Mamma Care Private Facebook Group [https://www.facebook.com/groups/411365156405705] Instagram: @A.L.L.MAMMACARE [https://www.instagram.com/a.l.l.mammacare/] This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacy

Season 3 Ep. 10- How can Social Workers help?

What does a Social Worker do? How can they help now? What resources are available to my family and my child? These are all very common questions. I’m delighted to have Molly Hanson, our hospital social worker on the podcast this week. She provides valuable insight into what a typical day looks like for her. We talk all about her role and how she assists families to get them connected to various organizations and nonprofits. And she gives us a handful of websites to help get your family and child the support they need during treatment and beyond. Links: https://www.mass.gov/pediatric-palliative-care-network-ppcn [https://www.mass.gov/pediatric-palliative-care-network-ppcn] https://whyme.org/ [https://whyme.org/] https://www.mass.gov/orgs/division-for-children-youth-with-special-health-needs [https://www.mass.gov/orgs/division-for-children-youth-with-special-health-needs] https://anddit.com/hope-portal [https://anddit.com/hope-portal] https://www.allmammacare.com/ [https://www.allmammacare.com/] A.L.L. Mamma Care Private Facebook Group [https://www.facebook.com/groups/411365156405705] Instagram: @A.L.L.MAMMACARE [https://www.instagram.com/a.l.l.mammacare/] This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacy