Meet the Author Ep. 9: The Developing Role of Occupational Therapy within Haemophilia Services

Revisiting the role of FVIII in Haemophilia A in 2026

In this episode, Cedric Hermans sits down with Jan Blatný, Consultant Haematologist at Masaryk University and University Hospital Brno, EHCC and EuroBloodNet Centre, and former EAHAD President (2024–2026), to explore the evolving role of Factor VIII in the management of haemophilia A in 2026. As new therapies such as emicizumab, rebalancing agents, and gene therapy reshape the treatment landscape, this conversation revisits where FVIII remains essential.

Meet the Author Ep. 10: The effects of traumatic pain memories on current pain experience in men with haemophilia

Pain is not always just physical; sometimes, it’s shaped by memory. In this episode, Merel Timmer explores a recent study by Anna Wells, Clinical Specialist Physiotherapist in Haemophilia and Allied Bleeding Disorders, on how traumatic pain memories may influence the experience of pain in the present. The research highlights a crucial but often overlooked dimension of care: the psychological and emotional layers of pain. Read the full article: https://www.tandfonline.com/doi/full/10.1080/24740527.2025.2530966

E-Learning Ep. 14: Heavy Menstrual Bleeding in Women with Very Rare Coagulation Factor Deficiencies

Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding its underlying mechanisms, clinical manifestations, and management strategies requires a multidisciplinary approach. In this episode, you will explore HMB in the context of VRCFDs from multiple perspectives and with a multidisciplinary approach.🎥 The full module is available on the EAHAD Academy: https://academy.eahad.org/eahad/2025/e-learning-modules-2025/4190161 [https://academy.eahad.org/eahad/2025/e-learning-modules-2025/4190161]

Meet the Author Ep. 9: The Developing Role of Occupational Therapy within Haemophilia Services

In this episode, Paul McLaughlin talks to Claire Forde, a specialist Occupational Therapist working in bleeding disorders. Listen to them discuss Claire's unique job role and how the occupational therapist service started in the Belfast Comprehensive Care Centre. Learn more about the service review (presented at EAHAD 2025) that Claire undertook, and how the findings of that review identify who may benefit from occupational therapy input and what care provision may look like in the future. Download the poster: https://www.eahad.org/wp-content/uploads/2026/01/EAHAD25-OT-Haemophilia-Poster-V5.pdf [https://www.eahad.org/wp-content/uploads/2026/01/EAHAD25-OT-Haemophilia-Poster-V5.pdf]

Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

In this episode, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee and Paediatric Nurse in Thrombosis and Haemostasis, discusses how the Neria™ Guard infusion set may help reduce pain and distress for children receiving emicizumab. Drawing on real-world experience, she highlights why even small innovations can make a big difference in paediatric care. 📰 Read the article: ⁠⁠⁠https://sciendo.com/article/10.2478/jhp-2024-0019