The Mindful Living
This episode is for anyone whose sense of self has quietly depended on something they never thought to question, until it started slipping away. At 28, Alexa Denaburg was diagnosed with spasmodic dysphonia, a rare neurological voice disorder. She joins host Sana on The Mindful Living to talk about what it took to rebuild her identity from the inside out. Alexa explains what spasmodic dysphonia actually is, why she chose a holistic healing path over the more common Botox route, and how nervous system work, community, and radical self-advocacy helped her find her voice again, literally and otherwise. About the Guest: Alexa Denaburg is a creative entrepreneur who was diagnosed with spasmodic dysphonia, a rare neurological voice disorder, at age 28. After conventional treatments didn't feel right for her, she pursued holistic healing, including nervous system regulation, tension release exercises, and sound healing, to rebuild her voice and her sense of self. She now volunteers with Dysphonia International, formerly the National Spasmodic Dysphonia Association. Key Takeaways: * Spasmodic dysphonia is a neurological disorder where the brain's signals to the vocal folds misfire, causing spasms; there's no single known cause, and it's a lifelong condition. * Botox injections are the most common treatment, but they're not the only path; holistic approaches like nervous system regulation helped Alexa when the standard route didn't feel right for her. * Losing your voice isn't just physical; it can shake your sense of identity, since we rarely think about our voice until it's gone. * Isolation often deepens a health crisis; finding a community of people with the same or similar conditions can restore a sense of normalcy. * Self-advocacy matters: if a diagnosis or treatment doesn't feel right, it's worth continuing to search for one that does. Connect With the Guest: Email: adenaburg22@gmail.com [adenneberg22@gmail.com] Community: Dysphonia International (formerly the National Spasmodic Dysphonia Association) [https://dysphonia.org/] Episode Chapters: [00:00] The Voice We Never Think About — Sana opens on identity built on something unnoticed (approx.) [15:00] Before the Diagnosis — burnout, busyness, and the first signs something was wrong (approx.) [19:00] What Is Spasmodic Dysphonia — a neurological disorder explained simply (approx.) [24:00] Choosing a Different Path — why Botox didn't feel right at 28 (approx.) [27:00] Relearning How to Live — tension release, sound healing, and nervous system work (approx.) [31:00] When a Hard Day Comes Back — staying steady without losing the ground gained (approx.) [37:00] Advocate for Yourself — Alexa's closing message for anyone mid-healing-journey (approx.) 🎙️ Want to Be a Guest on Healthy Mind, Healthy Life? 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[https://www.podhub.club/terms-privacy/standard-podcast-disclaimer] #podmatch #healthymindbyavik #podhub.club #spasmodicdysphonia #voicedisorder #holistichealing #dysphoniaawareness #nervoussystemregulation #chroniccondition #selfadvocacy #healingjourney #mindbodyconnection #mindfulliving #resilience #rareconditionawareness
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