Episode 133 - With Nicole Voss

Episode 133 - With Nicole Voss

Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was critical in helping her son to receive the correct diagnosis. Follow Nicole on TikTok - @nicolevoss

Episode 132 - With Natalie Little

Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family life. Natalie also talks about how strong and resilient her daughter is and how, even at the age of 1, she knows her own body incredibly well.

Episode 131 - With Katie Thomson

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk. After her son was born, Katie had an unfortunate time with misleading care, which led to confusion and increased anxiety. Later in the episode we talk about how having a community and support around can really help.

Episode 130 - With Andrea Guse

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public places to give him the most 'normal' life possible. Follow Andrea - @andrearguse [https://www.instagram.com/andrearguse/#]

Episode 129 - With Jodie Mulrainey

Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk about how Ollie is getting on with his ACE stoma and how it has improved his quality of life. Follow Jodie - @jodie_mulrainey28 [https://www.instagram.com/jodie_mulrainey28/#]