Behind the Desk_with Human

When Breathing Isn't Easy: Understanding Respiratory Challenges in Ehlers-Danlos Syndrome

In this episode, I speak with Dr. Rozenberg about how connective tissue disorders and autonomic dysfunction can affect breathing, why these symptoms are often misunderstood, and what patients and clinicians should know when standard testing doesn't provide answers. We also discuss practical strategies that may help improve respiratory function and quality of life.

Living with POTS & EDS | Dr. Paula Harvey

A conversation with cardiologist Dr. Paula Harvey on POTS in Ehlers-Danlos Syndrome (EDS), including symptoms, why it’s often missed, and how patients can better understand their bodies and care options.

The Hidden Reality of EDS Pain & Mental Health | Dr. Rachinsky & Dr. Slepian

What does chronic pain really look like in Ehlers-Danlos Syndrome — and how does living with invisible illness affect mental health over time? In this episode, pain specialist Dr. Rachinsky and psychologist Dr. Slepian join me for an in-depth conversation about the physical and emotional realities of living with EDS.

Rehabilitation & EDS: Building Strength, Stability & Function

What does rehabilitation for EDS actually look like? In this episode, we explore the role of rehabilitation programs in supporting individuals living with Ehlers-Danlos Syndrome (EDS), including pain management, joint stability, pacing, strengthening, fatigue management, and improving daily function. We also discuss the challenges many patients face when exercise and rehabilitation are not properly adapted to hypermobility and connective tissue disorders.

Why EDS Is Often Missed: The Long Road to Diagnosis | Darsh Sheth

Why do so many people with EDS spend years undiagnosed before finally getting answers? In this episode, Darsh Sheth explains the realities of diagnosing and managing Ehlers-Danlos Syndrome, the challenges patients face within the healthcare system, and why symptoms often become more noticeable over time. We discuss hypermobility, the Beighton Scale, referral barriers, and how healthcare providers approach the complexity of EDS assessment and patient care.