Extra To Love: A Trisomy Podcast

Ep 214: Anna, The Birthday Girl! (Trisomy 13)

Published on Anna's 5th birthday, this episode features Megan DeRuiter, mom to Anna who has Trisomy 13. She discusses the confusion of Anna being given a poor prognosis despite presenting well, the impact of her healthcare background on her early journey and what she has learned about the Trisomy 13 community.  Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org [https://www.extratolove.org] Follow us on socials! https://www.facebook.com/extratolove [https://www.facebook.com/ExtraToLove/] https://www.instagram.com/extratolove [https://www.instagram.com/Extratolove/] https://www.instagram.com/extratolovepodcast [https://www.instagram.com/extratolovepodcast]

Ep 213: An Honest Marriage Chat with Matt and Jenn (Trisomy 18 Parents)

In this episode of Extra To Love: A Trisomy Podcast, host, Jenn, and her husband, Matt, reflect on the impact of parenting a child with Trisomy 18 on their marriage over the past 6 years. They share their personal experience, lessons they've learned, ways they are still trying to grow and more. They also share the unique experience of navigating a trisomy diagnosis when one parent has experienced medical complexity and loss before with a child. Whether you are also navigating marriage while parenting a child with a trisomy diagnosis, or you are just embarking on this journey, there is so much community and wisdom to be found in this episode.  Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org [https://www.extratolove.org] Follow us on socials! https://www.facebook.com/extratolove [https://www.facebook.com/ExtraToLove/] https://www.instagram.com/extratolove [https://www.instagram.com/Extratolove/] https://www.instagram.com/extratolovepodcast [https://www.instagram.com/extratolovepodcast]

Ministry Moment: Faith Is A Command!

Are belief and faith the same thing? Listen as Julie compares the two, and discusses that God not only wants us to have faith, but commands it! Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org [https://www.extratolove.org] Follow us on socials! https://www.facebook.com/extratolove [https://www.facebook.com/ExtraToLove/] https://www.instagram.com/extratolove [https://www.instagram.com/Extratolove/] https://www.instagram.com/extratolovepodcast [https://www.instagram.com/extratolovepodcast]

Ep 212: Journey For Jazz (Trisomy 18)

Chelsi, mom of 5 year old Jazz who has Trisomy 18 (Edwards Syndrome), joins Extra To Love: A Trisomy Podcast to share her wisdom and perspectives on how Jazz's life has impacted their family, if this journey is worth it, the importance of connecting with the trisomy community and more. You definitely don't want to miss this episode!  Follow Jazz's journey and connect with Chelsi on instagram @journey4jazz and Facebook: Chelsi Crawford  Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org [https://www.extratolove.org] Follow us on socials! https://www.facebook.com/extratolove [https://www.facebook.com/ExtraToLove/] https://www.instagram.com/extratolove [https://www.instagram.com/Extratolove/] https://www.instagram.com/extratolovepodcast [https://www.instagram.com/extratolovepodcast]

Ep 211: All About Communication with Audrey and Olivia! (ST)

We are joined by Audrey Brock (M.S. CCC-SLP) and Olivia Lane (M.S. CCC-SLP) join us to share all about speech therapy, communication using AAC, and more. Although most people with Trisomy 18 or Trisomy 13 are non-speaking, that does not mean they are non-communicating. Communication can look many different ways, and speech therapists have a wonderful arsenal of tools to assist with that! Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org [https://www.extratolove.org] Follow us on socials! https://www.facebook.com/extratolove [https://www.facebook.com/ExtraToLove/] https://www.instagram.com/extratolove [https://www.instagram.com/Extratolove/] https://www.instagram.com/extratolovepodcast [https://www.instagram.com/extratolovepodcast]