GOALS: An ALS United Podcast

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of dollars for ALS research. Since then, Jeff has served on the board of ALS United Mid-Atlantic and he has worked to improve the lives of people with ALS and their caregivers. Recently, Jeff helped launch ALS.Community. This new resource provides information and social connection for people with ALS from across the country and the world. Jeff joins the ALS United Mid-Atlantic GOALS Podcast to explain the benefits of ALS.Community and to encourage others to join and be part of this growing platform. Learn more at https://als.community/ [https://als.community/] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. In this episode, Nadia discusses some of the challenges of navigating hope and caution, as well as how everyone can participate in scientific advancement. Nadia has been involved with ALS TDI and I AM ALS and she is now working with North Star ALS at https://www.northstarals.org/ [https://www.northstarals.org/] Our ALS mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP-43. Dr. Arnold talks about his education and inspiration through Haverford College and Thomas Jefferson University and his ongoing research work at Washington University. On April 9th, 2026, Dr. Arnold spoke about these topics at the ALS United Mid-Atlantic Help and Hope Symposium. To learn more about Dr. Arnold's work, visit https://genetics.wustl.edu/people/frederick-arnold-phd/ [https://genetics.wustl.edu/people/frederick-arnold-phd/] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in research, and addressing the needs of those at risk of developing ALS due to family history. Learn about End the Legacy at www.endthelegacy.org [http://www.endthelegacy.org] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Progress in ALS research in 2026 with Carol Hamilton of ALS TDI - GOALS Podcast

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to talk about the latest progress in ALS research and her work at ALS TDI. In this podcast video, Carol talks about the ARC study, making ALS research approachable for anyone, collaboration between ALS organizations and scientists, how Artemis II provides hope for science, and why 2026 is a big year for ALS research. Learn more about the work at ALS TDI and how you can participate at www.als.net [http://www.als.net] Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org