Growing the Gift

Mindfulness-Based Retreat for Mothers of Pediatric Transplant Recipients

Join us for this episode of "Growing the Gift."  where we replay "Mindfulness-based retreat for mothers of pediatric recipients " from the 2023 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Samantha Anthony, PhD, MSW, RSW, Health Clinician Scientist, Transplant and Regenerative Medicine Centre, the Hospital for Sick Children (Toronto) Joanna Mitchell, mother to pediatric heart transplant recipient. From the time of diagnosis, mothers are significantly more likely than any other family member to be the primary caregiver of a child with a heart transplant. Given that a mother’s ability to successfully cope with the demands of caregiving predicts positive social and health outcomes for the child, it is critical that maternal coping and wellbeing are supported. This presentation will highlight results from a two-day mindfulness-based retreat attended by 16 mothers of pediatric heart transplant recipients as an innovative intervention to improve maternal coping, quality of life, distress tolerance and reduce social isolation. Guided by the experiential expertise of Joanna Mitchell (Parent Partner), this presentation will emphasize the importance of patient- and family-centered care and the intersection of maternal wellbeing and child health outcomes within pediatric heart transplantation. Intro music: "Reach for Success" by Purple Planet (purple-planet.com). Used with permission. Outro music: "Fresh" by Emil Waldhauer (Notize), 2022. Used with permission. The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community. We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours. We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening! Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.

Caring for a Transplanted Child and the Effect on Siblings

Join us for this episode of "Growing the Gift."  where we replay "Caring for a transplanted child and the effect on siblings" from the 2022 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring CC Cunningham, Executive Director for the Chris Klug Foundation (CKF). Caring for a transplanted child can be a daunting task - both for the child and their siblings. While brothers and sisters may feel anger, resentment, or jealousy towards the new addition to the family, it's important to remember that they are going through just as big of a change as everyone else. By supporting one another, brothers and sisters can help make this difficult time a little bit easier for all of them. Families who have gone through this experience share what they've learned in this session. Join us to learn how to best support your recipient child's siblings and your transplanted loved one. Intro music: Time Warp by Emil Waldhauer (Notize), 2022. Used with permission. Outro music: Believe in Me by Emil Waldhauer (Notize), 2022. Used with permission. The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community. We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours. We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening! Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.

Eliminating CMV, EBV, BK as Post-Transplant Complications

Join us for this episode of "Growing the Gift."  where we replay "Eliminating CMV, EBV, and BK as Post-Transplant Complications" from the 2023 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Taylor Heald-Sargent, MD, PhD, attending infectious disease specialist at Ann & Robert H. Lurie Children's Hospital of Chicago, Priya Verghese, MD, MPH, nephrologist at Ann & Robert H. Lurie Children's Hospital of Chicago. Learn effective strategies for supporting younger children in expressing their feelings during hospitalization and after a transplant through the use of play therapy. Children can relate to the emotions and challenges portrayed in the stories. This approach not only facilitates communication but also fosters empathy, resilience, and a sense of empowerment in young transplant recipients as they navigate their unique experiences and emotions. Intro/Outro music: "Parasail" by Moby. Used with permission. The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community. We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours. We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening! Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.

How to Talk to Peers About Your Transplant

Join us for this episode of "Growing the Gift."  where we replay "How to talk to your peers about your transplant - 2023 Pediatric Transplant Conference" from the 2023 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Kirson Barnes, Donor & Sponsor Relations Coordinator - Transplants for Children, Eliot J. Lopez, PhD, MS, Clinical Assistant Professor in the Department of Psychiatry, University Children's Health, Carmelita Baza, mother of pediatric transplant recipient, Zachary Baza, pediatric transplant recipient, Iliana Bazan McGurn, LCSW, University Children's Health Transplants for Children is a non-profit organization headquartered in the San Antonio area that assists and supports children and their families in dealing with the challenges of organ transplantation. The organization was founded in 1986 by the Sutton Family, themselves a transplant family, to improve the lives of children needing organ transplants by providing financial, emotional, and educational support. Transplants for Children has a dedicated team of professionals who ensure that every child and their family receives the best care possible during the transplant process. Their programs include TFC Families Connect, STARS Scholarship, College Success, Pediatric to Adult Care Transition (PACT) Support, and Family Emergency & CoPay assistance. The organization is committed to positively impacting the lives of children and families affected by organ transplantation. We are honored to have them with us to talk about speaking with your peers about your transplant. Intro/Outro music: "Parasail" by Moby. Used with permission. The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community. We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours. We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening! Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.

Doctors with Transplants: Including Special Considerations for Women Part 2

Join us for this episode of "Growing the Gift."  where we replay "Docs with transplants: Including considerations for women " from the 2024 Pediatric Transplant Conference, part of National Pediatric Transplant Week and National Donate Life Month featuring Julie Bonn, MD (liver recipient), Assistant Professor in the Division of Gastroenterology, Hepatology & Nutrition at Cincinnati Children’s Hospital Medical Center Silke Niederhaus, MD (kidney recipient), Associate Dean for Faculty Affairs and Professional Development at the University of Maryland School of Medicine and a Clinical Associate Professor of Surgery Kristen-Allyson Ramones, MD (lung recipient), Pediatric pulmonology fellow at Rainbow Babies and Children’s Hospital Sara Kathryn Smith, MD (liver recipient), Medical Director of Pediatric Liver Transplantation at Johns Hopkins University. Hear from women who are transplant physicians who have lived experience in the world of transplant. Not only do they manage transplant patients but they are recipients themselves. They will address special considerations related to mental health, birth control, fertility and pregnancy. Intro/Outro music: "Parasail" by Moby. Used with permission. The "Growing the Gift" podcast is about pediatric transplant recipients from the eyes of those who live it every day: caregivers, parents, the clinical team, and the community. We know that being a transplant family comes with unique challenges, and we want to provide a space for you to feel seen, heard, and understood. In each episode, we will explore a different topic related to transplantation through interviews with experts and families like yours. We hope this podcast will be a source of information and connection for you as you navigate your transplant journey. Thank you for being part of our community, and happy listening! Look for Growing the Gift on Spotify, iTunes, and our very own webpage under podcasts.