Maddie's Joy: An Angelman Journey

Podcast by Adam Birchmeier

englanti

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Lisää Maddie's Joy: An Angelman Journey

Our daughter Maddie was diagnosed with Angelman Syndrome at 18 months old. This podcast explores her Angelman Syndrome diagnosis. We try to connect with the Angelman Syndrome Community at large and we touch on topics that all special needs parents can benefit from. Come and join our journey. We're all in this together.

Kaikki jaksot

26 jaksot

Episode 21: Cameron Nix

Cameron Nix joined the podcast for Episode 21 and talked about navigating the first year of his daughter's diagnosis.

20. loka 2023 - 24 min

Episode 20: Maddie's Eulogy

Madelynn Joan passed away on August 30, 2023. Many of you reached out to us to convey that you would like to be there but could not make the prayer service or funeral. This was Adam's eulogy that he read at the prayer service.

15. syys 2023 - 12 min

Episode 19: Your Story Matters

Having an Angelman Syndrome diagnosis can be a lonely process. I've found that sharing Maddie's story has opened the hearts and minds of many people outside of our family.

9. kesä 2023 - 18 min

Episode 18: Maddie's IEP

Maddie went through her first IEP meeting. Since Maddie has Angelman Syndrome, these Individualized Education Plans will be updated year after year. Hear how our first one went.

19. touko 2023 - 14 min

Episode 18 Preview: IEPs

A quick preview of episode 18 will be all about Maddie's first IEP meeting. I'll go over how it went, how I prepared, and what I wish I would have done differently.

12. touko 2023 - 42 s

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