Myeloproliferative Neoplasms CancerCare Connect Education Workshops

Clinical Trials: How They Transform the Treatment of Cancer

- Overview of Clinical Trials and Why They are Important - Understanding Your Treatment Options, Including Clinical Trials - Concerns About Participating in Clinical Trials - Types of Clinical Trials - What Happens in a Clinical Trial? How and Where Clinical Trials are Conducted - The Meaning of Informed Consent - Benefits and Risks of Participation - How to Participate in Clinical Trials - Specific Questions to Ask Your Health Care Team About Clinical Trial Participation - Accessing Resources for Clinical Trials: Where to Seek Information about Participating in Clinical Trials - Questions for Our Panel of Experts

Accessing Cancer Treatment in Rural Communities

- Overview of People in Rural Communities Accessing Cancer Treatment: Getting Diagnosed & Treated for Cancer in Rural Communities - Working with Your Health Care Team to Get the Best Care Near Home - Dealing with Cancer Treatments & Other Co-Morbid Health Concerns in Rural Communities - Specific Questions to Ask Your Health Care Team about Cancer Clinical Trials - Participating in Clinical Trials in Rural Communities - Working with Your Health Care Team to Manage Each Symptom, Treatment Side Effect, Discomfort & Pain - Adjusting to Your Cancer Treatment Over Time - The Importance and Challenges of Taking Your Treatment on Schedule: Adherence and Review of Resources to Remind You to Take Your Treatment on Schedule - Communicating with Your Oncology Team about Who on the Team to Contact with Questions and Key Questions to Ask - Discussing Quality-of-Life Concerns with Your Health Care Team - Questions for Our Panel of Experts

Challenges Young Adults with Cancer Face: Coping Tips

- Overview of Young Adults Living with Cancer, Including Delays in Diagnosis - Where to Seek Cancer Treatment: Selecting Your Oncology Health Care Team, Including Young Adult Cancer Programs - The Importance of Treatment Summaries - Follow up with Your Oncologist & Primary Care Doctor: Dealing with Physical Changes Due to Cancer or Its Treatment - Managing Post Treatment Side Effects/Late Effects: Coping with Concerns About Cancer Recurrence - Talking with the Health Care Team About Survivorship Questions & Concerns, Working During Cancer Treatment with Suggestions from the Health Care Team - Financial Concerns, Including Health Insurance Coverage, School, College & Career - Knowing Your Rights: ADA (Americans with Disability Act), FMLA (Family Medical Leave Act) & Additional Legal Protections - Choosing Who & What to Tell Others: Disclosure - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions and Discussion of OpenNotes - Questions to Ask Our Panel of Experts

For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems

- Role of Caregivers in Care Coordination for People Living with Cancer & Co-Morbidities - What Research Tells Us About Caregivers, Including Long Distance Caregivers - Coordinating Follow-Up Appointments - Discussion of Adherence – Taking Pills on Schedule - Planning Ahead with Your Pharmacist: Lead Time in Refilling Prescriptions & Planning for Weekends, Travel & Holidays - Accessing Resources for the Costs of Care, Including Homecare - Finding the Practical Help You Need: Co-Pay Foundations, Federal, State & Local Programs - Learning How to Appeal Insurance, Medicare & Provider Denials - Tips on Choosing Community & Medical Resources to Improve Your Quality of Life - Strategies to Communicate More Effectively with the Health Care Team - Time Saving Self Care/Self Advocacy Tips for Caregivers - Questions for Our Panel of Experts

Participating in Decisions about Your Care

- Coping with the Practical, Social & Emotional Challenges of Cancer - How a Cancer Diagnosis Affects Family, Partners & Loved Ones - Selecting a Cancer Care Team & Treatment Facility - What to Do When Presented with Multiple Treatment Options - When & How to Seek a Second Opinion - Your Relationship with Your Health Care Team - Getting Copies of Your Medical Reports to Review with Your Team - How to Anticipate, Prevent & Manage the Side Effects of Treatment - Understanding Your Treatment Choices & Follow-Up Care Plan - Your Survivorship Care Plan - Tips on Self-Advocacy & Advocating with Your Health Care Team - Questions for Our Panel of Experts