Spotlight Lipedema

Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam

It's finally out! Episode 15 of the Spotlight Lipedema is out - featuringPart 2 of my interview with Beth Rylaarsdam. This was a great conversation about how CurvyGirlBeth made her debut. We talk about how lipedema ladies tend to hide from picture or hide themselves and their legs in pictures and why Beth thinks that needs to change. How do we share knowledge of lipedema when we encounter people that appear to have it too. Find Beth Here: https://thecurvygirlbeth.com/links/ Instagram: https://www.instagram.com/curvygirlbeth/ Facebook: https://www.facebook.com/Curvygirlbeth TikTok: https://www.tiktok.com/@curvygirlbeth All Music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php [https://audionautix.com/index.php]

Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1

It's finally out! Episode 14 of the Spotlight Lipedema is out - featuring Beth Rylersdaam - Curvy Girl Beth. It was a great conversation - so good that we just kept chatting. So here's Part 1 of our conversation all about Beth's Lipedema discovery and what she's done to manage it. Stay tuned for Pt. 2 where Beth talks about how she became Curvy Girl Beth. All Music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php [https://audionautix.com/index.php]

The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13

This episode is a bit different than what we've done before. I had the chance to speak with Dr. Guy Eakin, the Chief Science Officer of The Lipedema Foundation. Dr. Eakin provides some background on the Foundation and the work they are doing to provide funding for lipedema research. In our conversation, we learn a bit about the main areas of research that are the current focus of The Foundation, what projects they have recently funded, and some of the areas of research that appear promising at this time. We also talk a bit about the challenges of the research and why developing tools for the diagnosis of lipedema is so difficult. And finally, we talk about how those of us with lipedema can contribute to lipedema research. Lipedema Foundation LInks: Home page: https://www.lipedema.org/ [https://www.lipedema.org/] Lipedema Foundation Registry: https://www.lipedema.org/registry [https://www.lipedema.org/registry] How to Find a Specialist: https://www.lipedema.org/findspecialists [https://www.lipedema.org/findspecialists] Lipedema Brochures: https://www.lipedema.org/brochure [https://www.lipedema.org/brochure] Foundation Blog: https://www.lipedema.org/blog [https://www.lipedema.org/blog] Innovative Solutions for Lipedema & Lymphedema Symposium 2021 Registration: https://learn.lipedema-simplified.org/holisticsymposium-oct2021 [https://learn.lipedema-simplified.org/holisticsymposium-oct2021] Intro Music "Walk in the Park," Bumper Music "Folk Bed" and Closing Music "In the Field" all courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php [https://audionautix.com/index.php]

Peace and Self-Care - A Chat with Nita Clewis - Episode 12

It's June and that means it's Lipedema Awareness Month. I hope that you will be taking advantage of all the events that will be occurring online to educate us and the general public about lipedema. There's too much for me to list here, but you can use these links for information on these events: From Lipedema Simplified: Lipedema Awareness Month Webinar Series 2021 (mykajabi.com) [https://masterclass.mykajabi.com/LAM2021] From Lymphapress: Mind, Body & The Matrix: The Role of Pumps and Other Therapies for Lipedema - Webinar Registration - Zoom [https://zoom.us/webinar/register/WN_z9-7OHxMSxWfnU8vnpeDkw] Lipedema Patient Roundtable: Webinar Registration - Zoom [https://zoom.us/webinar/register/WN_0eNk-9PrRNC0lVYrU207aQ] Webinar: Comprehensive Treatment for Lipedema: What You Can Do - Webinar Registration - Zoom [https://zoom.us/webinar/register/WN_sLUiw1kxQaui9lCYge6gNg] In the midst of the Covid crazy, I had the chance to speak with Nita Clewis. We spoke about finding peace with our diagnosis and our challenges, while at the same time, continuing to meet those challenges through self-care. How do we stay focused on self-care in a crazy world - especially as we try to get things back to something that resembles normal. Nita goes over what her daily self-care routine looks like, and how she keeps herself motivated to do it every day, while I try to not beat myself up too much for not doing everything I should be doing. I'm sure this episode will strike a note with many facing lipedema and everyday self-care challenges. If you like more words of wisdom from Nita, you can find them on her blog - The Whole and Balanced Living blog at https://www.facebook.com/WholeBalancedLiving. My cockatiels tried to join in the conversation too, so I apologize for the distraction. With or without them, I think you'll find Nita's advice helpful. I also discuss the recent release of the U.S. Standards of Care for Lipedema. Other countries have had such guidelines for years, but the US has just released our very first guideline. This is really important stuff to read and to share with your medical providers. Worth noting - lipedema is being reclassified from a "fat disorder" to a disease of the loose connective tissue. This can really help how the medical community perceives the disease and hopefully will lead to more money for lipedema research and better health insurance coverage. You can find an abstract and link to the report here: https://journals.sagepub.com/doi/10.1177/02683555211015887?fbclid=IwAR3Stk9_GHF7JEbUTdRs40D01FTGRhswjczcLD2zJX4TYo3_Z3cjGSKOTzc All podcast music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php [https://audionautix.com/index.php]

Spotlight Lipedema Returns - Episode 11

The Spotlight Lipedema Podcast is back for a quick episode to catch up with what's been going on and to let you know that we're still here - Getting ready for Lipedema Awareness Month in June. Intro Music "Walk in the Park," Closing Music "In the Field," courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php [https://audionautix.com/index.php]