Beyond the Waiting Room
Endometriosis affects 1 in 10 women, yet the average time to diagnosis is up to a decade. In this episode of Beyond the Waiting Room, Phoebe sits down with her friend Amy to unpack what that delay really looks like in real life. From getting her first period at 12, being repeatedly told her pain was “just IBS,” collapsing from flare-ups, and being dismissed as “too young,” Amy shares her 17-year journey to a stage 2–3 endometriosis diagnosis. She opens up about living with invisible pain, navigating work, relationships, and social life, and the emotional impact of learning one of her fallopian tubes is permanently blocked. The conversation also explores: * What endometriosis pain actually feels like (beyond “bad cramps”) * Why diagnosis so often only happens when fertility becomes part of the conversation * Managing endometriosis day-to-day through diet, exercise, and lifestyle * The reality of hormonal contraception, IUD side effects, and flare management * Egg freezing, future fertility, and “future-proofing” with endo * Why trusting your gut — and advocating for yourself — matters more than ever This is an honest, practical, and deeply validating conversation for anyone living with endometriosis, chronic pain, unexplained symptoms, or feeling unheard in healthcare.
2 episodios
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