New To Epilepsy? Navigating Insurance, Doctors, and Other Advocacy with Erika Fleck

Seizen' 1 Shake Out

In this episode, Jordan (host) and Chels (editor) sit down to celebrate and recap a whole year of Carpe Seizen. They pull up and talk through their favorite clips and some fun behind-the-scenes moments.  Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/], Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ [http://youngadultswithepilepsy.org/] Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

New To Epilepsy? Navigating Insurance, Doctors, and Other Advocacy with Erika Fleck

In this episode, we sit down with Erika, the founder of the Epilepsy Advocacy Network and secret comedian. We discuss her journey with epilepsy as a mom and creating what she so badly needed when she was first diagnosed— the Epilepsy Advocacy Network. Through candid discussion we learn how Erika came to the decision to have brain surgery, how she handled epilepsy and being a mom, and how she came to founding EAN. The Epilepsy Advocacy Network provides those diagnosed with epilepsy many resources, such as: HOBSCOTCH, PACES, Peer support, and even help navigating insurance and finding the right doctor. We hope you enjoy this conversation with Erika! Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ [http://youngadultswithepilepsy.org/] Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

How Epilepsy Saved my Life with Jessie Mae Lambert

In this episode, Jessie opens up about her journey from being misdiagnosed with anxiety to finally discovering she had epilepsy—and how an MRI for her seizures revealed something even more shocking: a brain tumor. Jessie shares how persistence, self-advocacy, and support from others helped her navigate this life-changing diagnosis and find the right treatment. Through an honest and inspiring conversation, we explore the intersection of mental health, epilepsy, and the power of community to build resilience. Don’t miss this compelling story about finding strength in the face of medical challenges. Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ [http://youngadultswithepilepsy.org/] Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

A Mother-Daughter Talk On Growing Up With Epilepsy

In this episode, we reverse the roles and sit down with podcast host Jordan and her mom, Mary, as a guest host. Jordan shares her journey living with epilepsy, from moving out at 17 to earning a master’s degree at 23. Reflecting on their early experiences, they discuss the uncertainties they faced when symptoms first appeared and the moments of clarity that emerged along the way. They explore what they felt they got “right” during Jordan’s childhood and the resources they wish had been available. Drawing from their experiences with YAWE, they talk about the invaluable support the organization provides and the upcoming projects such as parental support groups and expanded resources.  Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ [http://youngadultswithepilepsy.org/] Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/] Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

Embracing Epilepsy Through Golf and Art with Kenzie O'Connell

In this episode, we sit down with Kenzie O'Connell, a golfer and advocate as she shares her journey with epilepsy. We discuss the transformative moment of acceptance, detailing how she shifted from feeling blamed for her seizures to embracing her condition with confidence. Through candid reflections, we delve into the therapeutic power of sharing personal experiences with epilepsy and how this has fostered a sense of community and understanding. Kenzie also highlights how golf has served as a platform for advocacy, reshaping her relationship with her diagnosis and empowering them to inspire others. Join us for a heartfelt discussion celebrating resilience, advocacy, and the transformative power of sport and art.  Brought to you by Young Adults with Epilepsy: http://youngadultswithepilepsy.org/ [http://youngadultswithepilepsy.org/ ] Join our weekly peer support groups: http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/ ] Learn more about our monthly workshops: http://youngadultswithepilepsy.org/ ⁠ [http://youngadultswithepilepsy.org/ ] Find Us: Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland