Entry #91: IRD Congressional Briefing

Entry #91: IRD Congressional Briefing

In this week's entry, I share the recording from the IRD Congressional Briefing on Capitol Hill. I attended and spoke at this event with Alliance for Vision Research and the Foundation Fighting Blindness. It was an incredible experience, and I remain grateful for the opportunity to share my experience with Leber's Congenital Amaurosis. Thank you all so much for your continued support of the podcast journal!

Entry #90: Baltimore VisionWalk 2026

In this week's entry, I provide a recap of the 19th annual Baltimore VisionWalk. Our team Jeepers Creepers celebrated 13 years of walking to support the Foundation Fighting Blindness' mission to further drive critical vision research. We had a beautiful Walk Day with family, friends, and fantastic weather! Lastly, I share the details for the upcoming IRD Congressional Briefing on June 8th with the Foundation Fighting Blindness and Alliance for Vision Research. As always, thank you all so much for supporting the podcast journal! Questions or comments? Please reach out to CTLpodcastjournal@gmail.com

Entry #89: Lemonade Days

In this week's entry, I share my thoughts about the importance of avoiding a negative mindset when living with blindness. Specifically, I provide examples from recent challenges in my own life including a messy and muddy Memorial Day run. Listeners will learn my strategies for turning life's lemons into a sweet batch of lemonade! Finally, I share two upcoming awareness and advocacy events that I will be attending as we kick off the summer. As always, thank you all so much for supporting the podcast journal! Questions or comments? Email us at CTLpodcastjournal@gmail.com Baltimore VisionWalk Team Jeepers Creepers Link: https://give.fightingblindness.org/team/794338

Entry #88: NYC Night for Sight

In this week's entry, I provide a recap of our recent adventure to NYC for the Foundation Fighting Blindness' annual Night for Sight. We enjoyed a lovely evening of inspirational speakers as we celebrated the outstanding progress in vision research. We returned home with a renewed hope and motivation to continue contributing our time and effort into supporting the Foundation's mission to end blindness! Questions or comments? Email CTLpodcastjournal@gmail.com Support our Baltimore VisionWalk team Jeepers Creepers Here: https://give.fightingblindness.org/team/794338 Two Blind Brothers Link: https://twoblindbrothers.com/

Entry #87: Don't Forget to Look Back

In this week's entry, I share the origin story of our VisionWalk team Jeepers Creepers, and the positive impact that the Foundation Fighting Blindness continues to play in my vision story. We participated in our first VisionWalk in 2014, and for the first time in my life, I experienced hope for a brighter future. Additionally, listeners will learn new details about the early years of my diagnosis and treatment journey as the Foundation Fighting Blindness remains the cornerstone throughout it all. Thank you all so much for your support! Email us at CTLpodcastjournal@gmail.com Support Team Jeepers Creepers Here: Check out Jeepers Creepers' team fundraising page for Foundation Fighting Blindness