Chronically Cozy Business Chats
In this episode, I am joined by Avery Roberts and Kelly Berger, the hosts of the Wheel Talk podcast. Together, they dive into the vital importance of building community and creating accessible spaces for disabled voices. Both Avery and Kelly, who live with an ultra-rare neuromuscular condition (congenital muscular dystrophy), share their personal experiences as advocates within the disability community. As podcast hosts themselves, and disability advocates, Kelly and Avery connect with groups from all over, online and IRL to talk about the importance of creating space and advocating for disability and rare diseases. The episode serves as an empowering call to action, reminding listeners that advocating for universal design benefits everyone and that authentic storytelling is essential for normalizing disability in everyday life. KEY TAKEAWAYS * The discussion emphasizes that accessibility is the bare minimum, while equity, ensuring that spaces and systems are designed for everyone from the start, is the goal. * The guests explore the nuances of identity, including person-first versus identity-first language, and the importance of respectful, accurate terminology. * They highlight the positive, albeit slow, shifts toward authentic disability representation in media, such as in Broadway productions and film, stressing that true inclusion involves having disabled individuals in writer's rooms and director's chairs, not just in front of the camera. * They discuss how technology and social media have been transformative tools for connecting people with rare conditions who are geographically scattered, allowing them to share resources and find mutual understanding. MEET THE COZY CREATORS: KELLY BERGER Kelly is a disability and rare disease advocate based in Ohio. Living with Congenital Muscular Dystrophy, she is passionate about using her platform to enact real change for the disability community and putting a face to the rare disease experience. Kelly is dedicated to normalizing disability and fostering equity, ensuring that the community's voice is heard in all spaces. * Find Kelly: @thekellyberger [https://www.instagram.com/thekellyberger/] AVERY ROBERTS Avery is a New York-based professional dancer and disability advocate. Also living with Congenital Muscular Dystrophy, she is deeply focused on the importance of disability representation and authentic inclusion—both in front of the camera and behind the scenes in writer's rooms and director's chairs. Her unique perspective as a performer allows her to bridge the gap between the disability community and the entertainment industry. * Find Avery: @avery.nicole916 [https://www.instagram.com/avery.nicole916/] ABOUT WHEEL TALK PODCAST Kelly and Avery co-host the Wheel Talk podcast, a space created to connect the community, share resources, and discuss the "good, the bad, and the wild" realities of life with a disability. They cover essential topics often ignored by mainstream media, from universal design to the nuances of identity and language. * Listen to Wheel Talk: Search for "Wheel Talk Podcast" on your favourite streaming platform or follow them on social media at @thewheeltalkpodcast [https://www.instagram.com/thewheeltalkpodcast/]. Website: https://www.ladieslivingrare.com/ [https://www.ladieslivingrare.com/]
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