IPZO facto, Innovation: No Way But Forward!
AUDIO Epi 9. This IPZO facto, Innovation: No Way But Forward Podcast Episode 9 (Patient Advocates: The Lived Experience) features Sabina Kineen, a dedicated *patient advocate* for the rare disease community, sharing a compelling *chronic illness story**. Her family's journey began with her father's unexpected diagnosis of **Fabry's disease**, a **genetic disease* that highlighted significant *healthcare challenges**. Sabina's work within pharma and biotech ecosystems aims to amplify patient voices in drug development and promote greater patient **lived experience* data for optimal clinical trials and therapies. Sabina provides a poignant account of her family's journey with *Fabry's disease**, shedding light on the struggles faced by the **rare disease community**. She emphasizes the critical role of a **patient advocate* in amplifying patient voices within drug development, especially for conditions like this *genetic disease* where *clinical trials* are scarce. This narrative underscores the significant *healthcare challenges* and the urgent need for greater understanding and support for rare disorders. 🎯 Join the InnoPathwayZ waitlist now to access new content first + Founder's bundle. https://innopathwayz.myflodesk.com/ip... [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbXZXdVlDQ0xLOUJ6d3ZjbXp6VFg4dWNCSlFwUXxBQ3Jtc0tuNlMxNFNPWFJmcUt1RGlRZWRKQ2k3YTNqLUxUUE5XNUFHWFdwME44UFBvYzRDR1VMNktHQTE2bkxudU9WYmhocWZNRWZzbHY0U25tdVJJY1dJQWh3djBsTzl4WkUtSDJrWHFsZnNLcXF1VmhpRVlJMA&q=https%3A%2F%2Finnopathwayz.myflodesk.com%2Fipzwaitlist&v=VYwILIQqCLQ] ============================================= 📣 Subscribe and Listen to the IPZO Podcast here to get notified when released. / @innopathwayz [https://www.youtube.com/channel/UCSbItZOM6ouYt1cJ4aW5KiA] ============================================= ➡️ Connect with us! Sabine Kineen, Rare Disease Patient, Caregiver, and Advocate / sabina-kineen [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqa1hSaDhxRDdxMDQ2Ylg4SGtLT0hNRFg4OGdFd3xBQ3Jtc0tsSDlkTW9EY0UzWHFnb2lYcUxYYnJaVHZSRkVnM1JnMHRydXBUSGZvRkdJaHBKT25BYVFjLWZDSUpBZDdSQTNPajFMSHp1dS1zY1BMMzRha2FhQjVlTURNN3ZoY0VHQkVUaXNITVNnRXJqV0dJX0J3dw&q=https%3A%2F%2Fwww.linkedin.com%2Fin%2Fsabina-kineen%2F&v=VYwILIQqCLQ] InnoPathwayZ (IPZ) / innopathwayz-llc [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbjFaejhwRFRsdmNLX0VLcTVmb2pkbEVvMURod3xBQ3Jtc0ttZEoxVEJxSlVpNEpiQkVBOXE1VlZpMFpEYndsVWctU1ZQVi03cFBFMkJrY0JlRFJpdWd1clhzM3UteW5IVlVSU0psbW5lNENWNUlsdzJrVUxWbUhfM2hJdk5xalZTRnlxd3NpLUs2Mm1fcEFIZjZRMA&q=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Finnopathwayz-llc%2F&v=VYwILIQqCLQ] Zina Manji, Founder & Principal, Regulatory Strategist, InnoPathwayZ / zina-manji [https://www.youtube.com/redirect?event=video_description&redir_token=QUFFLUhqbUZXY191aUIyZlUweEdZbWtKenpVUlZodWhoUXxBQ3Jtc0trcHVmcW1kWmVNTURVcmo1TFVwR1hvUndreUNuX2Q3SVBReDM4T2JNT2U3bzAxLW10ekFQb09lUmtVeE1XSnU3ZnMteU80ZGVMeXQ0VjRqZE9lVFhrMGx5TzJnOExtNngwclkyMzV0LWg5S3NBOUFUUQ&q=https%3A%2F%2Fwww.linkedin.com%2Fin%2Fzina-manji%2F&v=VYwILIQqCLQ] Because with healthcare Innovation, there is No Way But Forward!
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