Episode 8: Kim's Story

Episode 8: Kim's Story

In this episode Kim shares about her complicated treatment journey for her acoustic neuroma. Kim had a larger tumor and was pretty symptomatic, so her surgery was fairly immediate. She had some unusual complications, including multiple blood clots in her brain that necessitated additional brain surgeries. All of these issues meant a longer and bigger recovery. Then at her five year MRI she found out she had regrowth and proceeded to have radiation. Despite all these challenges, Kim's positive energy really shines through as she shares navigating all of these difficulties to land in a place where she is feeling well and leading a full and busy life. #acousticneuroma #vestibularschwannoma #braintumor #acousticneuromawarrior

Episode 7: Sean and Chris

In this episode, I get to meet Sean Wolfe, the artist known as ‪@salvobeta‬ [https://www.youtube.com/@salvobeta], and Chris Eichenseer of ‪@SomeoddpilotRecords‬ [https://www.youtube.com/@SomeoddpilotRecords]. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Chris and Sean get real with the challenges of this diagnosis and the emotional roller coaster they went on. Contrary to what you may expect, this experience has only strengthened their commitment to the music scene. Sean even mentions the idea of creating music specifically designed for cochlear implant users like himself. Sean and Chris are very open about how this drastic diagnosis changed their worldview, leading them to prioritize what really matters in their lives. #acousticneuroma [https://www.youtube.com/hashtag/acousticneuroma] #vestibularschwannoma [https://www.youtube.com/hashtag/vestibularschwannoma] #braintumor [https://www.youtube.com/hashtag/braintumor] #acousticneuromawarrior [https://www.youtube.com/hashtag/acousticneuromawarrior] #hearingloss [https://www.youtube.com/hashtag/hearingloss]

Teaser Video- Sean and Chris

I had the amazing opportunity to record my first in-person podcast with these two musicians and longstanding friends who were both diagnosed with acoustic neuromas. Sean Wolfe of @salvobeta and Chris Eichenseer of @someoddpilotrecords shared their stories and how they have navigated their hearing loss alongside their passion for music. This podcast is a must-watch - so here is a little teaser while we await the full episode! #AcousticNeuromaAwarenessWeek #AcousticNeuroma #VestibularSchwannoma #Podcast #LuckyBrainTumorPodcast

Episode 6: DJ's Story

In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him cope. His heartfelt storytelling is both engaging and validating. #acousticneuroma #vestibularschwannoma #braintumor #acousticneuromawarrior

Episode 5: Maggie's Story

In this episode Maggie tells her story of balance issues that lead to an acoustic neuroma diagnosis. Maggie chose retrosigmoid surgery and experienced a phenomenal immediate recovery. Her life is busy and active these days- canoeing, hiking, and chopping wood. She does still struggle with balance and oscillopsia, but she has utilized several tools to assist her in her day to day. Maggie has also had a very unique journey with her hearing throughout her acoustic neuroma experience. Her warmth and encouragement really shine through in her storytelling. #acousticneuroma #vestibularschwannoma #braintumor #acousticneuromawarrior