Sanfilippo Syndrome and Spreading Advocacy Worldwide

Sanfilippo Syndrome and Spreading Advocacy Worldwide

Welcome to episode 4 of Medical Mom Talk. This week I had the lovely privilege to speak with Ashley Haywood, a mother, an influencer, and an advocator. After her daughter, Sadie Rae, was born, she began her journey in advocating for answers. Her advocacy journey didn't stop there. Once Sadie was diagnosed with Sanfilippo Syndrome, Ashley knew her fight for treatment and inclusion needed to continue. Join in on listening to her incredible journey and follow along her social media accounts to fight for children with Sanfilippo. Resources: >> Cure Sanfilippo and Sanfilippo resources: CureSanfilippoFoundation.org >> Sadie Rae Social Media Accounts: https://www.savingsadierae.org/ https://www.facebook.com/SavingSadieRae https://www.tiktok.com/@savingsadierae https://www.instagram.com/savingsadierae SAY HELLO! Website -> brand.page/medicalmomtalk Instagram -> @medicalmomtalk Email -> medicalmomtalk@gmail.com Music Licensing: PE4P2QVTKX24VPLC

Strabismus, CVI, Seizure Disorder and How a Diagnosis Leads to Maximum Love

Thanks for joining our third episode of Medical Mom Talk. This week, I had the privilege to chat with Lindsay Savage, a mother who defines resilience and strength. After the onset of seizures, her son, Sterling, was quickly diagnosed with Strabismus and Cortical/Cerebral Visual Impairment (CVI). This diagnoses has shaken their world, but their family has paved the way of healing/treatment with love and joy. Join us as Lindsay shares her story of resiliency and unconditional gratitude. Resources: >> Light Box Play Bundle https://www.westminstertech.com/products/light-box-play-bundle?srsltid=AfmBOopTXG528YKcOGJGGBA2J2ObuTISoRTyXysYc6ugnh2H7r747puH >> Children's Esotropia/Exotropia/Strabismus/Amblyopia Support Page: https://www.facebook.com/groups/188023837921443/ SAY HELLO! Website -> brand.page/medicalmomtalk Instagram -> @medicalmomtalk Email -> medicalmomtalk@gmail.com Music Licensing: PE4P2QVTKX24VPLC

Cerebral Palsy, Hemiplegia, and How Family and Community Can Help You Defy All Odds

Welcome for another episode of Medical Mom Talk. This week we talk to Erin Kutac, an incredible mother who has done all she can to help her son overcome all odds. A story of how family and community can make the difference in helping our children overcome obstacles and defy all odds. Resources: >> The Children’s Hemiplegia and Stroke Association (CHASA) - https://chasa.org/ >> Ronald McDonald House - https://rmhc.org/ SAY HELLO! Website -> brand.page/medicalmomtalk Instagram -> @medicalmomtalk Email -> medicalmomtalk@gmail.com Music Licensing: PE4P2QVTKX24VPLC

Progressive Familial Intrahepatic Cholestasis and Navigating Life After Transplant

Its the very first episode of Medical Mom Talk (MMT), what a journey it has been to get to this moment. This episode, I wanted to focus on how Medical Mom Talk came to light and our story of our sweet son and his journey with a rare genetic disorder, Progressive Familial Intrahepatic Cholestasis (PFIC) and navigating life after his life saving liver transplant. Resources: > The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support: https://cota.org/ > PFIC Network to inspire hope in the PFIC Community: https://www.pfic.org/ SAY HELLO! Website -> brand.page/medicalmomtalk Instagram -> @medicalmomtalk Email -> medicalmomtalk@gmail.com Music Licensing: PE4P2QVTKX24VPLC

Welcome to Medical Mom Talk

When you are told about your child's medication diagnosis, the world instantly becomes a scary, lonely, confusing place to navigate. Between doctors appointments, sleepless nights, people's misconceptions - it can be a LOT. This is why I created Medical Mom Talk, a place where moms can come and share their experiences and journey through their child's diagnosis. Where real, raw, beautiful stories are told and where true advice, connection, and community is born. My name is Kersey Henderson, and when my son was diagnosed with a rare genetic disorder, I felt it all. That is why I created Medical Mom Talk, because I don't want mom's to do this alone. I want to build a community that mom's can come to and share their experiences of being a medical mom. I hope through this journey, everyone can find something beneficial along the way. instagram: @medicalmomtalk facebook: Medical Mom Talk website: https://brand.page/medicalmomtalk Music Licensing: VZW0PIOE47ZSEXRM