Roped Into Health
PORPHYRIA A rare disease that is frequently undiagnosed / misdiagnosed Ginger shares her story of the symptoms she dealt with for over 30 years until she found a doctor that would listen to her history and spend time researching to finally find her answers. Ginger is now an advocate for the foundation and assists with helping people all over the world find resources for care. American Porphyria Foundation https://porphyriafoundation.org/ United Porphyria Assoc https://www.porphyria.org/
38 episodios
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