Something Wasn't Right: Missed Diagnoses & Rare Conditions
Going home was supposed to feel like relief. But it didn’t. In this episode, I share what life actually looked like after leaving the hospital — managing medications, adjusting to life without monitors, and carrying the constant weight of responsibility for a medically complex baby. From the ups and downs of daily life to the unexpected fear ofcomplications — including a blood clot — this is the side of recovery people don’t always talk about. Because getting discharged isn’t the end of the story… it’s the beginning of a new one. In this episode: -Life after CVICU discharge -Managing medication for a baby at home -Recognizing patterns, complications and continued advocacy -Navigating fear and distrust -Adjusting to a "new normal" as a medical parent If you’re in this stage right now, or heading into it, this episode will help you feel less alone. Follow Something Wasn’t Right for more on navigating life with a medically complex child.
7 episodios
Comentarios
0Sé la primera persona en comentar
¡Regístrate ahora y únete a la comunidad de Something Wasn't Right: Missed Diagnoses & Rare Conditions!