The Audrey and Jeremy Show
In this meaningful episode of The Audrey & Jeremy Show, Audrey and Jeremy sit down with Dr. Jonathan Santoro and Johnny Byrne to discuss Down Syndrome Regression Disorder (DSRD), the challenges families face, and the hope being created through research, advocacy, and community support.Dr. Santoro, a neurologist and researcher at Children's Hospital Los Angeles, explains what DSRD is, the early warning signs families should watch for, why early diagnosis is so important, and how ongoing research is helping improve treatment options for individuals with Down syndrome.Johnny Byrne shares his family's personal journey after his younger brother, Thomas, developed DSRD. He talks about the emotional challenges of watching a loved one struggle, how finding the right medical support changed their path forward, and how that experience inspired him to create the Agape Fund to help other families facing similar challenges.Together, they discuss:• What Down Syndrome Regression Disorder (DSRD) is• Common symptoms and early signs families should recognize• Why timely diagnosis and treatment matter• The latest research into the causes of DSRD• How the Agape Fund is helping accelerate research and support families• The importance of advocacy, community, and hope• How families can get involved and help advance the causeThis episode is a powerful reminder that no family has to face DSRD alone. Through science, collaboration, and compassion, researchers, advocates, and families are working together to create better outcomes for people with Down syndrome around the world.If you enjoyed this episode, please like, subscribe, and share to help spread awareness and support this important mission.#DownSyndrome #DSRD #JonathanSantoro #JohnnyByrne #AgapeFund #DownSyndromeAwareness #MedicalResearch #Inclusion #Advocacy #ChildrensHospitalLA #TheAudreyAndJeremyShow #Podcast #DisabilityAwareness #Hope #ResearchMatters
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