Ep. 7: From Surviving, to Thriving, to Optimizing in SMA: A Conversation with Crystal Proud, MD & Diana Castro, MD

Ep. 7: From Surviving, to Thriving, to Optimizing in SMA: A Conversation with Crystal Proud, MD & Diana Castro, MD

Progressive loss of motor function is an ongoing concern in spinal muscular atrophy (SMA), given the relentlessly degenerative nature of the disease. In this episode, host Diana Castro, MD, is joined by Crystal Proud, MD, Director of Neuromuscular Medicine at Children’s Hospital of The King’s Daughters in Norfolk, Virginia. They discuss the importance of optimizing long-term motor function, particularly as individuals living with SMA transition from childhood to adulthood. Actions today impact outcomes tomorrow. Learn more at www.LifeTakesMuscle.com [http://www.lifetakesmuscle.com/]

Ep. 6: People Living with SMA Discuss the Impacts of Progressive Muscle Weakness

In this episode, host Diana Castro, MD, leads a discussion with three adults living with spinal muscular atrophy (SMA). Listen in as Andrew, Lyza, and Doug share their firsthand experience on how SMA not only impacts their daily lives, but their future goals. They shed light on the nuances of progressive muscle weakness and loss of motor function, and the need for more in SMA to help maintain their independence. Learn more at www.LifeTakesMuscle.com [http://www.lifetakesmuscle.com/]

Ep. 5: How SMA Impacts Their Loved Ones’ Independence with Caregivers Amy, Kevin, and Soraya

Treating neurologists see snapshots of their patients’ lives. But caregivers to those living with spinal muscular atrophy (SMA) see the impact of progressive muscle weakness day in and day out. In this episode, host Diana Castro, MD, speaks with Amy, mother to 16-year-old Mckenna; Kevin, father to 10-year-old Bear; and Soraya, a professional caregiver to 23-year-old Lyza, about the remaining unmet needs in SMA, and their hopes for more. Learn more at www.LifeTakesMuscle.com [http://www.lifetakesmuscle.com/]

Ep. 4: The Benefits of a Multidisciplinary Approach to SMA Care with Timothy Estilow, OTR/L, and Jason Howard, MD

In this episode, host Diana Castro, MD, discusses the interdependence between specialties in multidisciplinary care for spinal muscular atrophy (SMA). She is joined by Timothy Estilow, OTR/L, an occupational therapist, and Jason Howard, MD, a pediatric orthopedic surgeon, to discuss how they and their colleagues work together to pursue the best outcomes, including issues relating to muscle strength, for those living with SMA. Learn more at www.LifeTakesMuscle.com [http://www.lifetakesmuscle.com/]

Ep. 3: Myostatin Review with Jena Krueger, MD, Leslie Cortes, PhD, and Adam Fogel, PhD

New research approaches in spinal muscular atrophy (SMA) are now targeting muscle. In this episode, host Diana Castro, MD, discusses myostatin—a new potential target in SMA. She is joined by Jena Krueger, MD, a pediatric neurologist, and Leslie Cortes, PhD, and Adam Fogel, PhD, researchers from Scholar Rock, to talk about what myostatin is, why it matters in muscle, and why it’s such an important focus for future developments in SMA. Learn more at www.LifeTakesMuscle.com [http://www.lifetakesmuscle.com/]