The Connected Patient: Why Healthcare Still Feels Disconnected

The Connected Patient: Why Healthcare Still Feels Disconnected

Why does healthcare still feel so disconnected — even after decades of digitization? Behind every repeated story, every missing record, and every moment of frustration is something deeper: the way health information is captured, shared, and too often siloed. Dr. Steven Lane is a practicing physician, clinical informaticist, and Chief Medical Officer at Health Gorilla. He has spent decades at the center of healthcare’s digital transformation, from the early days of electronic medical records to today’s national interoperability efforts, all while continuing to care for patients. In this episode, we explore: * Why patients and caregivers still feel like they’re starting from scratch * What’s really holding interoperability back in 2026 * How documentation became both a tool and a burden * The role AI will play in making care more accessible — and where it could go wrong * And what it would look like to truly put patients in control of their data This conversation is about more than technology. It’s about trust, design, and the choices we make in building systems that are meant to serve people.

The Caregiver’s Chair: The Invisible Work of Healing

In this deeply personal episode, Dr. Jill Goldenberg sits down with Ruth DiPasquale—a film and television professional, longtime New Yorker, and devoted caregiver. Ruth shares the story of her husband Stevie’s medical journey after treatment for prostate cancer led to devastating complications: severe radiation injury, repeated infections and sepsis, multiple surgeries, and years spent navigating hospitals and rehabilitation facilities. But this conversation isn’t only about illness. It’s about the often invisible labor of caregiving—the daily advocacy, emotional resilience, and relentless vigilance required to help a loved one survive a fragmented healthcare system. From learning to interpret lab results on her phone to spending hours at the bedside encouraging her husband to walk again, Ruth describes what it means to become a caregiver overnight—and how that experience changed both her life and her marriage. For clinicians, policymakers, and healthcare leaders, Ruth’s story offers an unfiltered look at what care feels like from the outside of the system. And for caregivers, it’s a reminder that the work you do—often unseen—is essential.

Season 2 Kickoff: Reflections from the First Five

Season Two of The Other Side of the Chart begins by returning to the voices that shaped the beginning of the show. In this special opening episode, Dr. Jill Goldenberg revisits the first five conversations — not as a recap or a finale, but as a foundation. These voices help ground the questions that will guide Season Two: How do we make healthcare more human? And what gets lost when systems are designed without the people living inside them in mind? Across these reflections, a set of throughlines emerges — the tension between documentation and dignity, efficiency and empathy, innovation and lived experience. Together, these conversations remind us that healthcare doesn’t live in workflows or data alone, but in the space between people. * Dalia, a patient living with multiple cancers, who reveals the disconnect between how the system documents her and how she actually feels — and why empathy and design are not “soft” considerations, but clinical ones. * Dr. Victor Montori, who challenges the industrialization of medicine and calls for care that is careful, kind, and grounded in unhurried human connection. * Dr. Barbara Morris, who brings us to the edge of care at the end of life, illuminating what patients truly want — to be heard, to have their suffering witnessed, and to be supported with honesty and dignity. * Dr. Kevin Larsen, who examines how documentation drifted from a tool for thinking into a burden — and why technology alone can’t fix systems that ask clinicians to document what doesn’t matter. * Pranam Ben, whose personal experience as a patient sparked a mission to rebuild healthcare infrastructure — and who reminds us that trust, transparency, and understanding are essential if transformation is to work. Together, these voices offer a roadmap for a future where innovation and humanity move together — where systems support clinicians instead of draining them, and where data serves patients instead of overshadowing them. This episode marks the beginning of Season Two — and a recommitment to listening. The next episode features Ruth, a caregiver whose years of navigating the healthcare system alongside someone she loves reveal a form of expertise that is essential — and too often invisible. Her story brings forward the caregiver perspective, a critical part of The Other Side of the Chart that rarely makes it into the record. Host & Producer: Dr. Jill Goldenberg Music: Relaxing Motivational Corporate by Fretbound (Free Music Archive, CC BY 4.0) Production: G-Burg Productions If this episode resonated, please follow, share, or leave a review. And thank you for being part of this community. In this episode, you’ll hear from:Up next in Season Two

Closing 2025 on The Other Side of the Chart

As 2025 comes to a close, Dr. Jill Goldenberg reflects on the first year of The Other Side of the Chart  and the voices that shaped it. This brief episode looks back on conversations with patients, clinicians, and innovators, and looks ahead to a special 2026 kickoff episode, Voices from the First Five. Thank you for listening, and see you in the new year.

The Operating System for Value-Based Care

In this conversation, Pranam Ben, founder and CEO of The Garage, shares his mission to build the operating system for value-based care. Drawing from a deeply personal story of frustration within the U.S. healthcare system, Pranam set out to design a platform that empowers better care. We explore the difference between systems that track patients and those that actually know them, and how Pranam’s company now supports over 16 million patients and 26,000 providers across 48 states. He talks about the need for trust, transparency, and technology that supports, not replaces, the human elements of healthcare. We also dive into the quintuple aim, the evolution of patient-centered care, and why a digital-first, data-first transformation is essential to sustaining medicine for future generations. What I appreciated most is that Pranam doesn’t speak about market share or buzzwords, he talks about responsibility to people he’ll never meet, and about building tech that can prevent harm and restore connection at scale. As he says, this is just the beginning. Chapters 00:00 A Mission Bigger Than Code 01:43 Introduction to Pranam Ben 04:25 Vitals Check: Theme Songs & Leadership Lessons 06:30 From a Broken ER Visit to Building a Better System 11:17 Founding The Garage and the First ACOs 13:05 What It Means to Be the “Operating System for VBC” 15:23 Patient-Centered Tech: Knowing, Not Just Tracking 18:10 Avoiding 30,000 Hospitalizations: Real-World Impact 19:34 Redefining Value-Based Care Through the Quintuple Aim 21:35 The Role of Tech in Honoring Patient Autonomy 23:58 Designing for Trust, Transparency & Access 24:23 Why Pranam Is Bullish on the Future 28:40 A Call to Support Digital-First, Human-First Transformation 30:55 Final Reflections & What Gives Him Hope 🔗 Connect with The Garage 🌐 thegaragein.com [https://www.thegaragein.com/?utm_source=chatgpt.com] 🙋‍♀️ Connect with Jill / The Other Side of the Chart 🌐 https://www.linkedin.com/in/jill-goldenberg-md-860104170/ 🎧 Subscribe and share the podcast 💌 Want to be a guest? theothersideofthechartpodcast@gmail.com [theothersideofthechartpodcast@gmail.com]