The Plasma Podcast

Interview with a patient of Plasma Derived Therapies; Megan Anne Ryan

46 min · 28 de feb de 2023
Portada del episodio Interview with a patient of Plasma Derived Therapies; Megan Anne Ryan

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Episode 6 – Interview with Megan Anne Ryan; Patient and Patient Advocate   We have a special guest in honor of Rare Disease Day in today's episode. Megan Anne Ryan shares her authentic patient perspective and serves as a voice for patients worldwide. She is a proud native Texan who was diagnosed with a Primary Immune Deficiency, specifically Common Variable Immune Deficiency, in her twenties. Megan goes on to discuss the diagnostic odyssey which is all too often lengthy and challenging for patients. Her unique perspective serves to shed light on the importance of plasma donors and the staff involved in plasma collection. Advocacy Work Megan served as the Board Treasurer for the Jose Antonio Grifols Lucas I Foundation [https://www.grifols.com/en/our-foundations] and has further expanded her reach to the organization Undies for Everyone [https://undiesforeveryone.org/].

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10 episodios

episode Season 2 Episode 2 - Reverse Plasma Podcast; Gabby Interviews Kris artwork

Season 2 Episode 2 - Reverse Plasma Podcast; Gabby Interviews Kris

Summary: In this episode of the Plasma Podcast, the Marketing Operations Manager at Proesis, interviews Kris Jonas, the CEO of the company. They discuss Kris's entrepreneurial journey, the inspiration behind starting Proesis, and the importance of fierce donor advocacy in the plasma industry. They also touch on the core values of the company and the challenges and rewards of being an entrepreneur. Key Points: * Kris shares how he started Proesis after being fired from a previous job. * Fierce donor advocacy is a core value of Paresis, driven by Kris's personal experiences as a plasma donor and witnessing the need for improved treatment and care for donors. * Gabby, new to the plasma industry, discusses how Proesis stands out by focusing on the donors and striving to provide a unique and positive experience. * Kris emphasizes the importance of authenticity and being true to oneself in leadership and business. * The challenges of entrepreneurship include balancing the need for change and innovation with the demands of running a business and meeting donor expectations. * Kris and Gabby discuss the importance of building a team that shares the company's values and the challenges of creating a supportive environment while managing the pressures of a startup. * They highlight the impact of stories from donors and patients, which remind them of the importance of their work and motivate them to continue improving the donor experience. * The conversation touches on the interconnectedness of the company's core values and the ongoing journey of learning and growth. Conclusion: The episode delves into the entrepreneurial journey and the significance of fierce donor advocacy in the plasma industry. It discusses the challenges and rewards of entrepreneurship, the importance of authenticity and core values, and the impact of stories from donors and patients. The episode highlights Proesis' commitment to providing a unique and positive experience for donors and its continuous efforts to improve the donor experience in the plasma industry.

29 de may de 202437 min
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Strength and Science A Mothers Journey Through CDG

The Courageous Fight Against Chronic Granulomatous Disease (CGD) This episode of the Plasma Podcast features an inspiring conversation with Keyatta Hodgson, who shares the challenging journey of her family dealing with Chronic Granulomatous Disease (CGD). Keyatta's story highlights the significant struggles and the heart-wrenching loss of two of her sons to CGD while advocating for awareness and the critical need for plasma donation. Listeners will learn about the impact of CGD, the importance of advocacy, and the power of community and medical support in facing rare diseases.  Introduction to Kiata Hudson's Story  Understanding CGD  The Impact of CGD on Kiata's Family  Advocacy and Support  The Vital Role of Plasma Donation Follow Keyatta and learn more information about her foundation via Instagram @hodgsonboysfoundation  Learn More: Chronic Granulomatous Disease (CGD) [https://www.ncbi.nlm.nih.gov/books/NBK493171/#:~:text=Healthcare%20Team%20Outcomes-,Chronic%20granulomatous%20disease%20(CGD)%20is%20a%20rare%20heterogeneous%20condition%20described,macrophages%20to%20destroy%20certain%20microbes.]

6 de may de 202436 min
episode Understanding the U.S. Plasma Collection Regulatory Landscape artwork

Understanding the U.S. Plasma Collection Regulatory Landscape

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1 de sep de 202351 min
episode Balancing Act: Unraveling the Ethics of Plasma Donation artwork

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A Deep Dive into Plasma Donation in the United States with Peter Jaworski Episode Title: Balancing Act: Unraveling the Ethics of Plasma Donation 1. Peter’s Background: 1. Polish by way of Canada (Peter’s immigration story) 2. Business ethics at Georgetown University’s McDonough School of Business 3. Ethics and the economics of the global plasma industry 4. Stolen from LinkedIn: He has published in Ethics, Philosophical Studies, The Journal of Business Ethics, The Journal of Value Inquiry, the Canadian Journal of Law and Jurisprudence, Ethical Theory and Moral Practice, amongst others. He has also written for, or been cited in, popular media outlets like The Economist, NPR, Bloomberg, the Globe and Mail, the National Post, Reader’s Digest, Psychology Today, USA Today, Maclean’s magazine, Canadian Business, and others. 2. Understading Plasma Donation  3. Ethical Considerations of compensating plasma donors  4. International Comparison of plasma donation to the system in the United States  5. Future Predictions and Provacative Questions Links and other key notes:  "We find that access to a plasma donation center reduces demand (inquiries) for payday and installment loans by 6.5% and 8.1%, respectively, with larger efects (13.1% and 15.7%, respectively) on younger borrowers." Blood Money: The Financial Implications of Plasma Sales for Individuals and Non-Bank Lenders  [https://www.stlouisfed.org/en/publications/economic-equity-insights/plasma-donations-high-cost-credit] Severe Combined Immune Deficiency (SCID) [https://primaryimmune.org/disease/severe-combined-immunodeficiency-and-combined-immunodeficiency] Proposal for a Regulation on substances of human origin (aka SoHO Regulation) [https://health.ec.europa.eu/blood-tissues-cells-and-organs/overview/proposal-regulation-substances-human-origin_en]

28 de jul de 20231 h 5 min
episode Interview with a patient of Plasma Derived Therapies; Megan Anne Ryan artwork

Interview with a patient of Plasma Derived Therapies; Megan Anne Ryan

Episode 6 – Interview with Megan Anne Ryan; Patient and Patient Advocate   We have a special guest in honor of Rare Disease Day in today's episode. Megan Anne Ryan shares her authentic patient perspective and serves as a voice for patients worldwide. She is a proud native Texan who was diagnosed with a Primary Immune Deficiency, specifically Common Variable Immune Deficiency, in her twenties. Megan goes on to discuss the diagnostic odyssey which is all too often lengthy and challenging for patients. Her unique perspective serves to shed light on the importance of plasma donors and the staff involved in plasma collection. Advocacy Work Megan served as the Board Treasurer for the Jose Antonio Grifols Lucas I Foundation [https://www.grifols.com/en/our-foundations] and has further expanded her reach to the organization Undies for Everyone [https://undiesforeveryone.org/].

28 de feb de 202346 min