The Russell Silver Syndrome Podcast
Kim is joined for this episode by her parents as they discuss how they coped as parents of a child with Russell Silver Syndrome (RSS) born when knowledge of the syndrome was far more limited than it is in recent years. They discuss what choices they faced and the decisions they made with the information that was available at that time. They will recount memories of Kim's childhood that they feel shows her personality and independence. Do they have any regrets with the choices they made for their daughter? If Kim was born in recent years would they try any treatment options or avail themselves of support that families have the options to use now in raising an RSS child? What advice do they have for families with young RSS children now? Learn and listen to more episodes about this rare form of Dwarfism at www.russellsilversyndromepodcast.com [https://www.russellsilversyndromepodcast.com]. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit russellsilversyndromepodcast.substack.com [https://russellsilversyndromepodcast.substack.com?utm_medium=podcast&utm_campaign=CTA_1]
17 episodios
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