The Secret Life of Sibs

Episode 5: Kaitlyn's Experience

27 min · 20 de dic de 2021
Portada del episodio Episode 5: Kaitlyn's Experience

Descripción

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

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9 episodios

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Episode 6: Brandon's Experience

Learn about Brandon's experience with his younger sister, diagnosed with Krabbe disease. He discusses how his family dealt with a dire prognosis, talks about the guilt that comes from being a sib, and shares what he would tell his younger self. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by Krabbe Disease, Krabbe Connect is a non-profit working to raise awareness and conduct research about the disorder: https://krabbeconnect.org [ https://krabbeconnect.org]. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20 de dic de 202130 min
episode Episode 5: Kaitlyn's Experience artwork

Episode 5: Kaitlyn's Experience

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager. Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources [https://www.siblingresources.org/resources]. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!  If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/. Please contact munkasantra@gmail.com [munkasantra@gmail.com] with any questions, concerns, or comments, or to inquire about being on an episode.  (Transcript coming soon!)

20 de dic de 202127 min