The Invisible Work of Coping

Through Myeloma Eyes – The Weather Forecast

Living with myeloma often feels like living by the coast — you never quite know what the weather will bring. Some days are sunny and energising, some are foggy and slow, and others arrive with full-on storms. In this episode, I share how learning to check my internal weather each morning has changed everything. From the day my “perfect forecast” suddenly turned to fog, to learning that slowing down isn’t failure — it’s navigation.

The Many Faces of Pain

Pain is often part of living with multiple myeloma, but it doesn’t always appear in the ways people expect. It’s not always dramatic or urgent. Sometimes it’s the quiet, persistent discomforts that become part of everyday life.   In this episode of Through MYeloma Eyes, Solomon Alexis shares his lived experience of the different forms pain can take while navigating life with multiple myeloma. From peripheral neuropathy and stomach discomfort to knee pain and ongoing back issues, he reflects honestly on how these sensations affect daily life, movement, and mindset.   Solomon also discusses the practical and emotional sides of managing chronic pain — learning to adapt, recognising when pain needs medical attention, and finding ways to keep moving forward even on uncomfortable days.   This episode offers a personal and thoughtful perspective for patients, caregivers, and anyone wanting to better understand the everyday realities of living with myeloma.

The Invisible Work of Coping

Hosted by Solomon Alexis, this episode blends honesty, humour, vulnerability, and insight as he shares the emotional, logistical, and psychological labour that often goes unseen. From the mental spreadsheets of everyday decisions, to the art of emotional regulation, to the constant process of adapting to new challenges, This is not an episide about illness. It’s an episode about being human while living with illness.

The Day the World Tilted

In this powerful special episode of Through Myeloma Eyes, Solomon Alexis shares one of the most personal chapters of his journey — the sudden loss of his mother, a woman deeply woven into every step of his cancer story. What was meant to be a simple birthday visit to Saint Lucia became a moment that changed everything. Solomon reflects on his mother’s quiet strength, her unwavering presence across time zones, the prayers before chemotherapy, the hospital visits, and the way she held his fears alongside her own. When she passed unexpectedly, the world shifted — not just in grief, but in identity, protection, and the meaning of support. This episode explores the intersection of cancer, loss, love, and the invisible ways parents remain our anchors, even in adulthood.   #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice

The Weight of Staying: Survivor’s Guilt

In this deeply reflective episode of Through Myeloma Eyes, Solomon Alexis opens up about one of the most complex emotional landscapes of living with cancer: survivor’s guilt. Through powerful personal stories — from losing his younger brother at 21, to the heartbreaking loss of his niece during the pandemic, to the passing of friends and others walking the same myeloma road — Solomon explores the quiet question many survivors carry: “Why am I still here… when they aren’t?”   #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice