Episode 127 - With Zandra Thomas

Episode 127 - With Zandra Thomas

Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life.Enjoy the episode

Episode 126 - With Laura Rigg

Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the ups and downs of surgery, as well as 2 bouts of enterocolitis.Finally Laura talks about the incredibly important topic of parental mental health, and how the need to be well in yourself is vital for your child.

Episode 125 - With Bekki

This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis. In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain water. Please enjoy the episode!

Episode 124 - With Denise Welch

Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time! Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country. This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge thank you to Denise and her team for making this episode possible. Enjoy the episode!

Episode 123 - With Sadie

Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease. Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio) confirmed this as TCHD. Later in the episode we talk about the future for Sophia and the funding needed to see Dr Wood for her pull through operation. To contribute to Sadie's go fund me for Sophia's surgery click below https://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmA [https://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmA] Follow Sadie - @sadieray__