Invisible in the Room: Talk To Us, Not Around Us

Invisible in the Room: Talk To Us, Not Around Us

In this episode of Unfiltered with Reyes & Victor, we talk about something many disabled people experience but not enough people understand: being ignored, talked around, or treated like we are invisible. We discuss what it feels like when people greet everyone else in the room but skip over the disabled person, or when they ask the caregiver, parent, sibling, or family member questions instead of speaking directly to us. This episode is about disability awareness, respect, ableism, and why people need to stop assuming disabled people cannot speak, understand, or answer for themselves. We share our thoughts, personal experiences, and the message we want people to understand: disabled people are not background characters in their own lives. If we are in the room, include us. Talk to us, not around us.

What If We Outlive Our Parents? A Real Talk About Caregiving

In Episode 7 of Unfiltered with Reyes & Victor, we have one of the most emotional and important conversations we’ve had so far: what happens if we outlive our parents? For many people with disabilities, parents are more than just parents. They are caregivers, protectors, advocates, and the people who understand our daily needs better than anyone else. Some people only have one parent. Some have both. Some have siblings, family, or other support systems. But the fear is still real: who will take care of us if they are no longer here? In this episode, we talk about caregiving, disability, family, future planning, fear, love, and the emotional weight that parents carry when they wonder what life will look like for their child after they are gone. This is not a negative conversation. It is an honest one. Some topics are uncomfortable, but they need to be discussed. And this is one of them.

What If We Didn’t Have SMA or Muscular Dystrophy? | Unfiltered Episode 6

In Episode 6 of Unfiltered with Reyes & Victor, we ask one of the most honest questions we’ve probably both thought about before: What would life be like if we didn’t have SMA or muscular dystrophy? This episode is a raw and unfiltered conversation about disability, identity, childhood, confidence, missed experiences, and the “what if” factor that comes with imagining a life without our conditions. We talk about how different life might have been, what we may have done differently, and whether our personalities, friendships, dreams, and mindset would still be the same. But this conversation is not about regret. It’s about reflection, honesty, and recognizing how SMA and muscular dystrophy have shaped who we are today. No pretending. No sugarcoating. Just two friends having a real conversation.

Goals Beyond the Diagnosis

In Episode 5 of Reyes & Victor Unfiltered, we talk about our goals, ambitions, and the mindset it takes to keep pushing forward while living with muscular dystrophy and SMA Type 2. After taking a few weeks away from recording, we got back behind the mic for a real conversation about looking beyond limitations, staying motivated, and continuing to chase the things we want out of life. This episode is about growth, perspective, and proving that there’s more to us than a diagnosis. Two different journeys. One real conversation. No script. No filter. Just real talk.

Episode 4: Society & Perception – What People Get Wrong

In Episode 4 of Reyes & Victor Unfiltered, we talk about society and perception—focusing on the misconceptions people often have about living with muscular dystrophy and SMA Type 2. We share real experiences of being misunderstood, underestimated, and treated differently, and how we’ve learned to navigate those moments. This episode is about breaking assumptions, giving real perspective, and opening up conversations people don’t always have. Two different journeys. One real conversation. No script. No filter. Just real talk.