It Shouldn't Be This Hard: Navigating Dementia Care with Dr Lyn Weinberg

The H Word: Hospice, Palliative Care & Real Talk with Dr. Lyn Weinberg

Nobody wants to say it, but we're saying it. Lloyd's doctor, Dr. Lyn Weinberg, joins Alana and Darah to break down the difference between hospice and palliative care, when to ask for it, and why choosing hospice isn't giving up; it might actually be the most loving decision you can make. Plus, what families say to loved ones with dementia that isn't helping, the clinical language that needs to go, and Lloyd unlocking a memory from Saigon that nobody saw coming.

It Shouldn't Be This Hard: Navigating Dementia Care with Dr Lyn Weinberg

Part 2 with Dr. Lyn Weinberg, geriatrician at Allegheny Health Network. When someone gets diagnosed with cancer, they're surrounded by resources. Dementia? "Here's your prescription, good luck." Dr. Weinberg gets it because she's fighting to change it. She shares why families are left to figure this out alone, what happened during Darah and Alana's two-day hospital vigil with their dad, and the programs proving that dementia care doesn't have to be this hard. This is about more than medical terms. It's about families who deserve better. ABOUT DR. LYN WEINBERG Dr. Lyn Weinberg has been a geriatrician with Allegheny Health Network since 2013 and is now director of the geriatrics division for AHN Primary Care Institute. She specializes in Geriatric Medicine and Internal Medicine, and is affiliated with West Penn Hospital, Allegheny General Hospital, Forbes Hospital, and Temple University Hospital. * Ask a Doc: Dementia and Caregiving [https://www.highmarkhealth.org/blog/care/Ask-a-Doc-Dementia-and-Caregiving.shtml] DEPARTMENT OF AGING * Pennsylvania Department of Aging: pa.gov/agencies/aging [http://pa.gov/agencies/aging] * Local Resources: pa.gov/agencies/aging/local-resources [http://pa.gov/agencies/aging/local-resources] ALZHEIMER'S ASSOCIATION * Website: alz.org [http://alz.org] * 24/7 Helpline: 800.272.3900 PROGRAMS & INITIATIVES * Aging Brain Care Program | AHN [https://www.healthyagingchallenge.org/awardees/dementia-super-network-] * Dr. Malaz Boustani [https://medicine.iu.edu/faculty/4975/boustani-malaz] * GUIDE Model (Medicare) [https://www.cms.gov/priorities/innovation/innovation-models/guide] * Hospital Elder Life Program (HELP) [https://help.agscocare.org/] * AHN HELP Program Recognition [https://www.prweb.com/releases/allegheny-health-network-program-for-older-adults-receives-top-designation-from-american-geriatrics-society-302009131.html]

She Answered and Changed Everything: Meeting Dr. Lyn Weinberg (Part 1)

This is the woman who answered when we didn't know who else to call. Dr. Lyn Weinberg—Lloyd's gerontologist, the reason we got to speak at the AHN Aging Brain Caregiver Conference, and honestly, one of the most important people in our caregiving journey. We found her by accident. We were desperate, calling doctors who no longer existed, until someone at AHN listened to us fall apart on the phone and connected us to Dr. Weinberg. And from that first appointment, we knew: this is what good care looks like. In Part 1 of 3  conversation, Dr. Weinberg gets real about why she chose geriatrics (spoiler: it started with painting nails in nursing homes as a kid), why there are only a handful of geriatricians for an entire region of aging adults, and what happens when you're a doctor who feels everything your patients' families are going through because you know it's coming for you too. She also shares how she takes care of herself so she can keep showing up for families like ours, and offers advice for caregivers who are struggling to find the specialized care their loved ones need. In Part 2  we dive into the programs and resources Dr. Weinberg is championing  some national, some right here in Pittsburgh for people living with dementia and Alzheimer's. If you've ever felt lost in the healthcare system, this episode is for you.

New Year, Same You (Just Polished Up!)

Alana and Darah are ditching "new year, new you" and getting real about setting goals that actually work when you're a caregiver. From derailed travel dreams to delayed doctor appointments, they're sharing how caregiving impacts your plans and what to do about it.

Episode 3.2 Pastor Melanie's Journey Through Faith, ALS & the Sacred Work of Caregiving

In this continuation with Pastor Melanie Davis, we dive deeper into the realities of walking alongside family members through ALS diagnoses. Melanie shares how her faith has been both tested and strengthened through caregiving, the tension between her pastoral calling and family care demands, and finding grace in the hardest moments. This episode is for anyone torn between their calling and caregiving responsibilities, or searching for hope in impossible circumstances