T3fitt Scoliosis Podcast

Ep 64 Agnes Chronic Pain health Couch

Live pain free with Scoliosis, Arthritis, integrative nutrition. Retrain your breath We were made to move Born in Poland as young girl in her gym class, she was diagnosed with Scoliosis. At age 16 with a 48 curve she had surgery. Being curious about her own surgery, she convinced her orthopedic to let her observe a spinal fusion using Harrington rods. Not living with any pain, pre & post surgery, life moved as it always had pain free. It wasn’t until she had her 2nd child that pain started to set in. Having a corporate job, wearing heals, life all took a toll. Not being able to support her Scoliosis, getting out of bed became painful. Cortisone shots weren’t a possibility because of her fusion.  She worked with therapist for 4 years, she learned how use her body, firing her glutes, how to walk, building core strength.  Living with Scoliosis & Arthritis pain free. Every day we open up, it’s like we’re blooming. Once we don’t have that message of pain in our head, there is no limit.  Agnes shares a story about when she wanted to skate. Her daughter was scared remembering the pain her mom lived with. It wasn’t until her 4th car accident that, her perspective changed. “It was about the work.” This will not impact me. It’s the power of mind set. With that, she said, “I’m going to be okay.” We need kindness for ourselves.  This is her story. Where can you find Agnes: Instagram: thesimplebeautifulwellness [https://www.instagram.com/thesimplebeautifulwellness/] This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit teresat3fitt.substack.com [https://teresat3fitt.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Ep 63 Jaq- Twisted Wanderer

At age 13 Jaq was diagnosed with Scoliosis. When she was 16, the pain started. This lead her family into a deep dive of doing research to find out what the nexts would be. She would do physical therapy with no help of her curve decreasing & not being prescribed a brace.  It would be 10 years until she had surgery. She continued living her every day life playing sports & being active. In her senior year of high school, she stopped playing rugby because of the increased. She went to orthopedics, no one prescribing Schroth Method or bracing. “Here’s physical therapy, hopefully it doesn’t worsen.” Surgery would be her next step. After many appointments & opinions, Jaq & her family found an orthopedic in West Slip, New York Dr. Sevarella.  She would have surgery that kept her in the ICU for a week.  Recovery was rough. I remember burning pain. I remember waking up crying happy that I woke up.  “You have to fight for your new spine.”  She shares, looking back, those were my second first steps. Jaq shares one of the best post Scoliosis stories about her mom driving home being stopped by the police.  Upon getting home, we realized I wasn’t given meds. 24 hrs later she got her meds but it would take 2 weeks for life to feel normal. My mom was my rock.  It would take 2 years for my spine to feel normal.  So much more goes into surgery than having surgery. Mentally I felt like I was never prepared for what was to come.  I didn’t think about what would be like to bath myself or wash my hair or being able to walk without assistance.  Having surgery has it’s benefits.  Believe in your decisions. You are smart enough.  Where can you find Jaq: Instagram: Jaq [https://www.instagram.com/thetwisted_wanderer/] This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit teresat3fitt.substack.com [https://teresat3fitt.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Ep 62 Dr. Gardner CEO Co Founder National Scoliosis Clinic, Orthopedic Surgeon & Professor

Growing up Dr. Gardner liked science. In college he majored in Chemistry.  "Medicine was a way to touch peoples lives.” Dr. Gardner was drawn to Orthopedic surgery, based on the magnitude & immediacy  He trained at Hospital for Special Surgery in NYC, graduating in 2007. It was during this time, he was optimistic, viewing the future through rose colored glasses. When he started talking with patients he learned about the health care system is in the US. He started to feel disillusioned on how the system fails patients.  It was then, he saw specifically how the Scoliosis journey had problematic components. Dr. Gardner still believes that a lot of these surgeries are potentially avoidable with better systems in place. Dr. Gardner partnered with Karena Thek founder of Scoliosis Pilates [https://www.instagram.com/scolio_pilates/?utm_source=Scolio%20Pilates&utm_campaign=e9fd8ca911-EBCW1&utm_medium=email&utm_term=0_d9cc94183c-e9fd8ca911-134014982&mc_cid=e9fd8ca911&mc_eid=2a470fe474], bringing Kavon Saber (an adult living with Scoliosis) to help patients solve living  with Scoliosis. Dr Gardner shares his thoughts on Harrington Rods & Tethering.  Some of Dr. Gardners come to him post surgery with “failed back syndrome.” Working with Dr. Gardner & his team patients can self scan using the FDA approved app which  asses the severity of a patients scoliosis.  “The system is not your fault.” “Losing hope is easy but there is help out there.” Where can you find Dr. Gardner:  Instagram: National Scoliosis Clinic [https://www.instagram.com/p/CzG00UGNGGN/] wwwNationalScoliosisClinic.com [https://nationalscoliosisclinic.com/scoliosis-solution-webinar/?nab=0] LEAVE A REVIEW: If you enjoy this episode, we’d to hear what was your take away. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @⁠⁠T3fitt.⁠⁠ [https://www.instagram.com/t3fitt/] Do you follow Teresa on TikTok yet? Head over to ⁠⁠T3Fitt⁠⁠⁠⁠ ⁠⁠ [https://www.tiktok.com/@teresat3fitt]and follow her and her team for additional content. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit teresat3fitt.substack.com [https://teresat3fitt.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Ep 61 Emily a friend, a client with a spinal fusion

Ep 61 Emily a friend a client with a spinal fusion Emilys Scoliosis was diagnosed when they did the toe touch test In high school, Being a very active teenager playing field hockey and other sports, her back started to hurt. Her mother thought the pain might be associated to sports. At age 14, Emily had a growth spurt.  During this time, her curves increased. Though her curve increased, it was never recommended that she wear a brace.  She started to live with consistent pain, “turning off the emotional side.” I was a kid who wanted to keep living life.” In 2007 Emily would have a spinal fusion. Having her mother, brother & friends group, she had continuous supported.  The day after surgery, they orthopedic team had her up & walking.  I asked Emily if she had an physical therapy? She went to a chiropractor pre surgery even before she was diagnosed. One of the memories that stays with her, she used was the arm bike. When she got home, she noticed she had gained an 1” - 2” in height.  It would take years until Emily would open herself to the emotional impact of having a spinal fusion.  “I have to work with myself, not ignore myself.’ Where can you find Emily? Instagram: Emily [https://www.instagram.com/wemilyeber/] LEAVE A REVIEW: If you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @⁠⁠T3fitt.⁠⁠ [https://www.instagram.com/t3fitt/] Do you follow Teresa on TikTok yet? Head over to ⁠⁠T3Fitt⁠⁠⁠⁠ ⁠⁠ [https://www.tiktok.com/@teresat3fitt]and follow her and her team for additional content. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit teresat3fitt.substack.com [https://teresat3fitt.substack.com?utm_medium=podcast&utm_campaign=CTA_1]

Ep 60 Crystal Woman of Steel

Crystal’s journey with Scoliosis started at age 2. At age 2, her mother noticed that Crystal was walking differently than her friends. Being concerned, her mother searched for answers. Remembering that a cousin had Scoliosis, she thought maybe Crystal has Scoliosis as too.  They found the⁠ [https://royaldevon.nhs.uk/our-sites/princess-elizabeth-orthopaedic-centre/]Princess Elizabeth Orthopedic treatment center [https://royaldevon.nhs.uk/our-sites/princess-elizabeth-orthopaedic-centre/] ⁠ [https://royaldevon.nhs.uk/our-sites/princess-elizabeth-orthopaedic-centre/]in Trinidad. After having X-rays, it was confirmed Crystal had Scoliosis.  Every 6 months, Crystal would have her assessment. During one of her assessments, it was found she had a heart defect. The focus shifted from her Scoliosis to her heart.  At ages 2-6 she was wore the Wilmington brace (a brace that is still used today in Trinidad) wearing it 23 hrs a day for the 1st year. The brace would rub against her chest. Because of an already existing heart problem, the brace affected her breathing. This caused her to stop wearing the brace. At age 14 her curves increased to 70-80 degrees. At the doctors suggestion, she would wear the brace. During this time she would be diagnosed with Multi neuron disease.  At age 18, with a 90 degree curve, she had surgery. Her surgery was a success but she lives with occasional pain. Her curve post surgery is 60 degrees.   Through the foundation her parents instilled in her, Crystal lives in a world of always finding the positives. Having Scoliosis at such a young age, was sensitive. She had the belief that her treatment would give her a straight spine & no more pain. Though life didn’t go as planned, she never let her situation bring her down. This drives Crystal to help people.  “My past experience has fulled me to do better.” Her mother instilled the belief of being optimistic.” It’s an invisible illness I am unique. You cannot allow your circumstances out way the rest of your life & so started Woman of Steel.  You're stronger than you think Listen to her story & how her journey has changed the lives of others Where can you find Crystal:  Instagram⁠ WomanofSteel97⁠ [https://www.instagram.com/womanofsteel97/] LEAVE A REVIEW: if you enjoy this episode, we’d to hear what was your take away. Be sure to do over to Apple Podcasts & leave a review. If you know someone who this can help please share. Take a screen shot & share it with us on instagram @⁠⁠⁠⁠T3fitt.⁠⁠⁠⁠ [https://www.instagram.com/t3fitt/] Do you follow Teresa on TikTok yet? Head over to ⁠⁠⁠⁠T3Fitt⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠ [https://www.tiktok.com/@teresat3fitt]and follow her and her team for additional content. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit teresat3fitt.substack.com [https://teresat3fitt.substack.com?utm_medium=podcast&utm_campaign=CTA_1]